Thursday, July 30, 2009

"Every trial endured and weathered in the right spirit makes a soul nobler and stronger than it was before."~James Buckham






One of the many blessings,yes there were blessings amongst the deep pain and sorrow, that came from being on the "long term residency" plan of the 4th floor,was that Miss Zoey and I were able to spend some amazing one on one time together.Now,trust,me I wish that the circumstances were different but that time together was just that,amazing.Since we have been home there has been little or no time for her and I to just snuggle up.I miss that.In a weird way.Tonight, a rare occurrence happened around here.The house,the entire house, was ... silent.Not empty silent,just silent.Jess was upstairs in her room relaxing after a long school day.Taylor was in bed with a nasty migraine.The boys were upstairs carrying on their summer tradition of watching a movie in their "theater" bedroom/bunk bed.Tonight's viewing choice,"Spy Kid's 3-D".Joe will be none too happy in the morning, as he only made it about a 1/4 of the way through.And Mark ... working.New show=crazy hours.That left Zoey and I.She was pretty wiped out by 8:15 and was so content to just hang with me on the couch.As tired as she was,she still was full of personality.Such sweet noises and darling looks and the most sincere and unsolicited hugs and kisses.At one point,she was just lying on her back,twirling her hair and sucking that upper lip the way she has always done since she was a fragile newborn.It is her way of letting us know she is exhausted.And I,I just stared at her.As I did, I glanced up at the sculpture you see in this photo and in one split second all these emotions came flooding over me.That sculpture was given to me the day after Zoey was born.It came from the Cayman Islands and was a gift from a very dear friend.That sculpture represents so much more then a bond between a mother and child.To me it represents the indomitable spirit of this little girl.One who fought to be here from pre-birth and to this very day has never,ever stopped fighting.I looked at her tonight as she so peacefully tried to lull herself to sleep.I looked at her little curled up left hand and her little left eye that ever so subtly floats upward.Both are reminders of the devastating stroke she suffered in-utero.I listened to her gentle little voice and was reminded of the fragile baby that was so medically compromised that we never,not ever,heard a peep from her,not a sound,not a cry,until her heart was repaired at 5 1/2 months old.I watched her smile so sweetly at me and again thought of the smile I yearned to catch a glimpse of in those early months.People always spoke of smiling Down syndrome children,I saw them in all the books I poured over but again, I had to wait until her heart was able to tell her body that it was indeed alright to expend such a simple gesture without taxing an already over taxed body.That same smile she flashed at me tonight, gave way to the sickening and heartbreaking Infantile Spams months where there was no longer a smile to be found.Anywhere.It had been lost in a dark and ugly haze of a tiny brain living in constant chaos.Tonight,as Zoey twirled her long hair I was reminded of the hair,that by all accounts should be long gone from the nasty cocktail of chemotherapy drugs but tonight as I stroked that auburn hair I was reminded of the stubborn and determined child who said,no way,you took my hair once,I worked hard to get it back,I'm keeping it.In our very brief and uninterrupted half hour together,a wide range of emotions and memories were replayed in my over worked and seriously over tired mind but each one gave way to not bitterness or sadness but rather disbelief in the spirit of this little soul who has defied all logic and in some cases,medical explanation.By 9 o'clock I headed upstairs with the tuckered out fighter.I need to do what I did tonight ever so often.These reminders will lend hope to the uncertain future that lies before us as well as serve as fuel for the journey.Spirited,courageous,feisty fuel.

Love this little set of pictures.Well, except for the fact that she looks super washed out.I played around with the color and couldn't figure how to get it back.She isn't that pale although I think she is nowhere near the energy level she should be at.I have no idea how long to expect her to drag before she feels more energetic.I want her spunky and I don't think she feels very spunky on some days.One picture is of Zoey pretending to put a phone up to her ear.She just started doing that every once in awhile if prompted.I lover her disgusted look too ... we get that alot!

If you ordered bracelets,first,thank you and second,I am mailing them out tomorrow.Thank you also for all your well wishes on my complaining jaunt.I feel a bit better today and may be finding my out of the worst of this latest episode.Not a fun thing to function with at all.

Tuesday, July 28, 2009

Jessica's Sidekick ...




Miss Zoey is extremely attached to Jess.Especially since she moved home.I mean seriously attached.The minute Jessica walks in,Zoey frantically waves and makes her way to her.Zoey outstretches her darling little arm and "asks" to be pick upped.At which time she does anything and everything NOT to be put down.Zoey squeezes Jessica's neck,buries her head in her shoulder and holds on for dear life.If Jess is sitting on the couch,especially if she is using the computer,Zoey high tails it over to the edge and makes her feelings known,in no uncertain terms,that she wants up.So cute.Their bond is beautiful and as a mother,so absolutely joyful to watch.

On an absolute side note,totally unrelated and something I don't often do here,I am going to complain.I mean I do complain here but not usually about myself.Tonight I complain.I think my body is letting me know that the stress of the last 9 months is catching up.I won't whine too much or go into every gruesome detail.Promise.Whining is not really my style.I tend to suck it up fairly well.Blessed with a high tolerance for aches and pains and overall sickness.But lately,oh boy.I have a few very real and chronic ailments that can pop up in varying degrees at any given time and right now one in particular is rearing it's ugly head in a major way.Currently and unfortunately it is Meniere's.Meniere's is a nasty disorder.Once I said that I wouldn't wish it on my worst enemy.I have re-thought that given the demise of a few relationships as of late.I know,not very kind but actually just kidding.Seriously though,this thing is kicking my butt.It is a daily struggle.Some days better then others.Some weeks and years,better then others.The last few weeks:bad.I am in a constant state of vertigo.My hearing,not good.My ability to think clearly and get my words from my brain to my mouth:really,really not good.Nausea:horrible.Headaches:Really horrible.Triggers:barometric pressure,some foods,especially those high in sodium,stress(hello!!!!)computer time,reading and certain stores.Yes,stores.For instance I am similar to a dog with acute sense of hearing.Strange I know.But true.I can ALWAYS tell when a store has a massive security system.Example:Target.When I am in a place like I am with this thing now,I have to get the heck out of there quickly or avoid it altogether.Sends me right over the edge.Bottom line is that I need a medication adjustment and a hearing test.The problem with Meniere's is that the uncontrolled episodes leads to permanent hearing loss.Meniere's is usually limited to one hear but in a small percentage it is bilateral.Lucky me,I,like Zoey,fall in the minority.I am not over exaggerating this thing.It is yucky.So,August 7th I go into the House Ear Clinic and find out what needs to get done because I can't seem to snap out of this particular lengthy episode.It is constant but has yet to drop me down.When I say drop I mean that literally.Once these membranes break I am sent to my knees,vomiting and in bed till it passes.I am a bit nervous that is looming on the horizon.So my blog friends,if I don't comment please don't think I am neglecting or not caring.I will read but won't be able to always comment.Somethings have to give until I get a handle on this and computer time is one of them.Sorry for the whine.I will try to limit the next whine.Next up:Lupus.

*My personal favorite is the picture where they are signing "I love you" to each other!

Sunday, July 26, 2009

A lazy mom's post ....

I have to admit,this is kind of a re-post.I put it on a long time ago and it can also be found in my "Learn More and Be Inspired " section,but if you haven't seen it it yet I highly encourage a viewing.Or perhaps a re-viewing.It is well worth it.Makes me cry every time.
*Don't forget to pause the blog music at the bottom ... the visual is breathtaking but it's the words that are awe inspiring.

The weekend went fast.Mark worked until 4am on Friday and then turned around and went back in on Saturday.Didn't feel much like a weekend.Summer is fading way too fast and I am trying to figure out how to hold on to it a bit longer.With Zoey having been in the hospital and housebound for 7 months,I am so not ready to get back to rigorous routine.Don't get me wrong,the control freak in me loves routine but the newly acquired side of me of not sweating the small stuff would much prefer to stretch out the lazy,hazy days of summer.

Headed down to Children's for a few hours this afternoon to visit with a little buddy and his mom.He is part of the extra chromosome club as well.He has ALL and is just having a heck of a time getting a handle on it or rather mostly, a handle on the the side stuff that comes along with it.Hated going back to that place but loved it at the same time.Bizarre I know.That combination of joy and sorrow intertwined.Feeling sick in some moments knowing how at ease and comfortable I have become on a cancer floor.Children's is my home to a certain extent,filled with a family that I have come to love over the years.Especially since the latest in October.I do not think that feeling will go away.Ever.I am indebted.A debt I will never be able to repay but at the same time need to find a way to honor this child of mine that so many have labored tirelessly and lovingly to save.Lately I am feeling that inexplicable inner nudging,ever so gently guiding me in ways to begin the phase of giving back and paying it forward.Already this week I have had three mini brainstorming ideas with three different people.Now it's a matter of bringing them to fruition.It will happen.I know it will.When it's meant to.Waiting has never been my strong suit but I am learning.Slowly but surely learning.
I received a few emails with people unable to change the quantity of bracelets they want to order.As I walked myself through it this morning I see that the best thing to do is put the dollar amount in based on how many you want and that will work best.Example:If you want five,chip in 25.00.Sorry about that.I am new to these chip in boxes and in hindsight there probably was a better way to go about it but how,I have no idea!Don't be surprised if there are a few more gliches along the way till we get this rolling,So thamnk you in advance for your patience and most of all thank you for your support.

Friday, July 24, 2009

So Excited ....


Just read that coming in September,Gifts 2 is expected to be released!You can go here and pre-order.I already have.I absolutely cannot wait to read this companion to Gifts.It is sure to be filled with unbelievable stories that illustrate and embody the very core of our miraculous children and the many ways they have inspired those that know and love them.However,a bit of a spoiler for me, as I have had the privilege of reading one story already.My very own second born Caitlin,wrote an amazing piece about her perspective on the many gifts of Miss Zoey Grace.So excited to see it in print and as usual,so proud of Caitlin.

The week has flown by.Time continues to move at an unnatural pace.Almost 2 months since Zoey has come home.Before we blink the anniversary of her diagnosis will be upon us.October 29th to be exact.Not a date I will ever forget but some how time is allowing me to forget the rough patches and embrace the good stuff.Today we went to the pediatricians for a check up.Her first in almost a year.I won't get too cocky on how normal things felt because I feel like that sets me up for the other shoe to drop.Instead I will say it just felt like a welcome change.Zoey weighed in at 22lbs 12 ounces.I think that puts her slightly above the 10th percentile on the Down syndrome chart.Yes,we have our own chart.As tiny as that seems,considering she only weighed 17 lbs before she started treatment,I'll take it.She is 32 1/2 inches long,just about in the 50th percentile.So Zoey is a long and super lean one.My pediatrician is totally fine with her growth.She is still on infant formula,Nutramagin.We will do a consult with a nutritionist to see if she has anything she wants to change up.We will continue to work on oral feeding and her doctor truly feels she absolutely won't be 100 % g-tube dependant forever.It's just going to take time.And lucky for us,we have been blessed with the gift of time.We hit on a ton of subjects,as you can imagine.I won't bore you with them all,just bore you with a few.We are going to continue all therapy in home until she is three as not to expose her fragile body to all the stuff out there.Love that.We decided as well that now is the time to get her fitted with some orthotics.Walking is far off but getting her little feet and ankles positioned properly will help ease that process for her.I learn something new everyday from our indispensable Dr.K and seeing the heart of his practice is with his Special Needs kids,I really hit the jack pot the day I found him for my older children years ago.Maybe Someone knew one day I'd be needing him.I like to think of it that way.Somehow that brings me comfort.

The rest of the crew is doing well.We are enjoying a laid back summer and much needed reacquainting time.Jess and Matt are crazy busy.Jess finishing up her CNA certification program in preparation for nursing school.Clinical work is in a nursing home.She announced the other day that she will NEVER put someone in a home.I guess I better be on my best behavior from here on out.All kidding aside,she is really enjoying her time there.Sounds strange as it is really difficult physical and emotional work but each day she comes through the door with new stories about her new found wiser friends.Matt is taking that 120 hr. month long EMT class in Long Bach.We miss him here and can't wait till he's back.Matt and Jess really have things mapped out and we are proud of them considering they just graduated from Pepperdine and jumped head first back into the fire.Caitlin and Danny and baby Charlie seem to be doing fine.They sound great each and everytime we talk.I miss the little one.I know she has changed so much already.Funny how a tiny thing could only be in your life for 2 weeks and it seems as if you can't imagine them every not being here before.She fits so nicely into our complicated group.Can't wait to get my hands on her soon.Hopefully we will find our way down there again in a couple weeks.Taylor is getting herself ready to leave the nest.Fly or on some days I think run away from here.She is so cute because each day she comes home with a new item for her dorm room and she has already printed and framed an incredible amount of pictures of her family,her special needs kids from school when she was the president of Panther Pals and oh yeah ... Brandon!We are going to miss her and something tells me she is going to miss us too,or at least the boys and Zoey.Speaking of the boys .. busy being carefree boys.Swimming everyday,playing outside till dark and for the last 4 nights making their room a "theater " and watching movies on the portable DVD player on Joe's bottom bunk.And then there's Mark.Insane at work.New show which has found him home no earlier than 1am all week and tonight he called to say he would be sleeping there.The guy works like a dog and NEVER complains.Oh and me you might ask.Okay.Tired but anything beats the hospital.I am getting in my running.Unfortunately with Marks schedule I am not going out until 9 or so,after I get Zoey to bed.Jess holds down the fort and I put in the ipod and go.Tomorrow is a 10 mile day but Mark probably won't be here so my 7 am run with Jess will have to be a later run on my own.That catches everyone up.Whether they wanted to be or not.Bracelet sales will start tomorrow.I will have a paypal account set up.All proceeds go directly to both Jessica's and my Team in Training fundraising, which in turn solely benefits the Leukemia/Lymphoma Society.Jess and I are are each about 60 % there.We need to raise $3,300 a piece.Jess is getting nervous because if you don't reach your goal by September then we are responsible for the remainder.I'm not in the least bit nervous as things always seem to work out.With a little faith and a little hope,things always work out.Hasn't she learned that by now?She doesn't need to look very far for the reminder.The reminder comes in a tiny but mighty package of about 22 lbs 12 oz and 32 1/2 inches tall.That is all the reminder we will ever need.Ever

Wednesday, July 22, 2009

"Only if you've been in the deepest valley can you ever know how magnificent it is to be on the highest mountain."~Richard Nixon




Today we met with Zoey's new speech therapist to go over the speech evaluation that was done a few weeks ago.Up until now,speech was not part of our Early Intervention services but once Zoey was finished with her last round of chemo I knew the clock was ticking.Early Intervention is only available until the age of three.March the 2nd 2010 will be here before we know it.A little more then 7 months to be exact and when you get right down to it, we have only been able to utilize a very small portion of the last 2 1/2 years due to all the sidetracking.Sidetracking sounds so much nicer then actually putting down all the diagnosis' doesn't it?I often tire of writing the litany of her medical history so I think I'll stick with sidetracking.Anyway,when I met with our service coordinator to put into place Zoey's new service plan, I inquired about speech and as luck would have it, Zoey's authorization was relatively easy to come by.Zoey's speech therapist is a dream.Positive,encouraging,highly knowledgeable,kind,caring ... I could go on and on.Suffice it to say, I truly believe we have been blessed with yet another amazing member of Team Zoey.As we sat and chatted and reviewed the assessment,Zoey snoozed away while we watched the video monitor for movement and we cruised through the extremely thorough findings of the report.I am quite certain that there are some who might have read the percentages in delay or saw where their child fell in comparison with their actual age and quite frankly they might be bummed.Not me.Now,that doesn't make me right and the "some" wrong,it just makes me me and them them.Zoey is 28 months old and the majority of her Basal ages,skills that have been mastered in a specified age range,was 6-9 months.Yep,I'd say she is delayed but all I kept thinking as we went over the 5 page report was:how great is it that we are even here.That Zoey is even here!How awesome is it that we have even been given the opportunity to put a plan into action at all.That is one of the main gifts of the last 8 months.We do not look at the could have beens or the should have beens we look at the gift of now.So yes,there is work to be done.The process won't come easy and effortlessly.We hope one day Zoey will be able to convey to us her needs through a combination of signs and PECS and maybe even verbal cues and as her mother,that one day she will be able to convey to me if she is physically hurting and not feeling well because I think alot of parents out there with non verbal children, worry we won't be able to catch a subtle indication of serious illness or injury.We have a plan and I absolutely love plans.If we are fortunate we will meet some of the goals we have put in place and anything other will just be icing on the cake.Today, I feel like we are on top of that mountain.The climb was long and arduous and I often questioned whether we would make the ascent but we have left the valley below,for now,for this moment and today,right now the view is completely and utterly magnificent.

*pictures aren't the best of quality but there was just something about her in these.Some maturity thing.Some confidence thing.Some "look at me and how far I've come"thing that I just loved.

Tuesday, July 21, 2009

Down but Not Out ...

Okay.It is late but I just have to jot down a few thoughts so we can just push past that last post.In many ways,continuing with the momentum of that post feels disrespectful to the journey our family has taken since the conception of this blog.Disrespectful to,as Caitlin so eloquently spoke of,the heart and soul of this site,and that is the incredible little Miss Zoey.So I will cut to the chase.It is the consensus of our family to not go private.Making that decision was not that difficult in the end because one would only have to look to the overwhelming response we received in the form of comments,to see why.Not by sheer number but rather by the content of those comments.Many brought us to tears.All were simply so genuine and kind and did not at all,remotely resemble the ugliness of what brought us to this day in the first place.We also received the most unbelievable emails lending their support and advice as well.Mind you,most all of the comments and emails were from complete and total strangers.Many of whom have never even left comments previously but have followed this road alongside us in silence.Silently but resounding loudly in support of each trial and triumph that we faced.All of this was absolutely mind blowing and mind boggling.How is it one precious child could reach so many?From all over the world.Literally.I don't have the answers.What I do know however,is that Zoey's life, at the tender age of 2 years and 4 months,continues to leave me awestruck.I am so proud to be the mother of this little girl, who is oblivious to what has gone down and just goes with the flow of her daily life.Maybe I should have trusted her lead as I have done all of her young life and went with her inspiring ability to forgive what has been given and just move forward.I am disappointed in myself that I allowed the ignorance of a select few to take hold and take over what I ultimately know is true.And it is this:the majority of this world we live in is filled with kind and loving people.Filled with those people that make a daily concerted effort to give to and give back to their fellow man.The human spirit is an amazing thing and we have once more been touched and changed by it.Thank you is inadequate but it is all I have at the moment.Where do we go from here?I suppose forward.I will continue do the only thing I know how to do when it comes to this blog and that is to write and share as openly and honestly as any one wants to hear.It is what people will decide to listen to that will matter in the the end.What I hope people hear is just that:HOPE.Hope in the form of a tiny baby who has surpassed the seemingly insurmountable and along the way became the greatest teacher to her family and all who love her.Zoey has so much more teaching to do.I have so much more learning to do.I am flawed and I am so very far from perfect.I do not hold all the answers but I do hold the unwavering belief that there is so much more to come for my family on this journey beside this magical girl.We would love for you to come along for the ride.But in choosing to do so know that this family,my immediate family, is the single most important thing here.Not this blog.In many ways,these days that lie ahead of us could quite possibly be the most enlightening.Maybe it is here we will all see what God has been leading us to all along.We have long said that Zoey has been what we have been waiting for all of our lives.That she,with her indomitable will to survive, will give to us our "a- ha" moment and we will finally see, with crystal clarity, what God has been leading us to all along.

Sunday, July 19, 2009

My hand is being forced ....




Well, perhaps it was only a matter of time. Another comment awaited me in my in-box this morning. A Sunday, and if I am not mistaken, the Lord's day but trust me, there was nothing Godly about this comment, but this person wanted to hide behind their Christianity as reason to find it necessary to stand in judgement of me and my family. Attacking our faith and once again attacking our parenting skills, or lack thereof. This was not anonymous,they left their name, Crelle, but did not have a site or a way for me to contact them back. Might as well have been anonymous but must have made them feel better because they put down some name, probably fictitious anyhow. This new commenter tried to surmise the reason the previous anonymous poster might have felt the need to voice their opinion. Let me make this PERFECTLY clear: The first posters comments, there were two, on Monday, were mean spirited, ugly, nasty, vile and just down right sick. There was not even a touch of religion or faith, much less God. Today, however, I was given an ear full by a "Christian." Really? Christian you say? Who placed you in the position to pass judgement on my family and my children? Where and when were you given the power to stand and recite the "way" we are to live our lives in the eyes of God and the teaching of the Bible? YOU are the exact reason why people shy away from organized religion.How dare,once again,does someone come here and impose their ignorant views on how one of my children are living their so called "sinful"lives. I went to church today and I stood before God...and that my friend is the ONLY thing that matters. As for "exposing your children" to the things on my blog. Seriously? Do your CHILDREN read my blog? If so, that is kinda weird don't you think? And last time I checked, no one forced you to come anyway. Don't like something here then keep moving, by all means keep moving. Now, unfortunately this latest has led to me having to do some reevaluating as to what direction this blog is going. Caitlin and Danny have voiced their uneasiness as to having their child's picture and various other bits of information scattered here about them. In hindsight, did I make a mistake over a year ago divulging too much information about myself and my family? Probably. So now I believe I am going to have no choice but to go private. This is no longer about me. These are my children and my grandchildren. The sad thing is though, one of the most beautiful things about this site is that it allowed me to meet the most amazing people and families. Families, who in the end, without hopefully sounding too presumptuous, have garnered strength and inspiration from a very real, very honest and very humble family, just trying to make their way in this very complicated world. I am talking about families who have found us after finding out they were having a child with Down syndrome. Families with children with congenital heart defects. Families with babies who have had strokes in-utero,which is an uncommon occurrence but is a devastating blow for new parents. Families who just received the news that their precious child is suffering, and trust me it is suffering, from Infantile Spasms. Still more, are the families who's child was diagnosed with TMD at birth and are facing the prospects of that rare blood disease turning into full blown leukemia, just has it had Zoey. I could go on and on, but I think you get my point. This blog and the gift of Zoey and her incredible will to survive, has been just that, a gift. I have shared her life and our journey with her, openly and honestly. Along the way I have shared with you the beauty of the rest of my children. And they are truly beautiful. Bright and yes, highly educated, unlike the rude assumptions of strangers. They are magnificent reminders of all that is good, and to defile them in any way, shape or form, is nothing short of cruel. So the decision is this: we may go private. Along with that, it is my understanding that I will only be able to let this site be viewed by a select 100. I select, and therefore I will know absolutely for certain who sees what. Sad really as this site averages an upward number of 1000 hits a day. I will keep you posted if things go private. I have to look into how that works. Fairly simple I believe. I am sad today. Really and truly sad. I leave you with these quotes, of which I could certainly learn from as well in my day to day living:

We evaluate others with a Godlike justice, but we want them to evaluate us with a Godlike compassion."
~ Sydney J. Harris

"When you judge another, you do not define them, you define yourself."
~ Wayne Dyer (Psychotherapist, Author and Speaker)

“Remember that I’m Human. Before you judge me or decide how you’ll deal with me, walk awhile in my shoes. If you do, I think you’ll find with more understanding we can meet in the middle and walk the rest of the way together.”
~Eric Harvey and Steve Ventura: Walk Awhile in My Shoes

"If you judge people, you have no time to love them."
~ Mother Teresa

"Judge not, that ye be not judged."
--The Bible

Caitlin felt compelled to write a comment after I wrote this post.I was once again blown away by her eloquence and decided to copy and paste it here.We continue to be so proud of her and her beautiful little family.

"As that I am am one corner of the triangle that forms the centerpiece of this issue (that triangle being my newly formed family), I thought it appropriate to raise my voice not in anger, embarrassment, shame, or defensiveness, but in honesty, candor, and pride for my family, both immediate and extended.

I am 20 years old. Daniel, my fiance, is also 20. Our daughter is 8 days old.

My pregnancy and her birth into our lives was unexpected, not ideally timed (whatever 'ideal' means), and with challenges due to mine and Danny's age and our 'experience' and 'capability' to be parents (at least from an outside perspective). Though only twenty, I have been a mini-mother in raising my two brothers of elementary school age and of Zoey, the true heart and reason for this blog, a child with vast special needs and atypical development.

I am a high school graduate. I was accepted into every university I applied to for a college education. I chose the route of community college and continued to pursue studies even after learning of my pregnancy.

I have worked since the age of 14, in high school part time, and, over the past year, full time in order to support my budding family. At my most recent job, I was promoted to a supervisor for a company that aided in the independent care of disabled adults living with a wide range of disabilities. This supervisor position had previously only been given to employees with a bachelors degree, a strict prerequisite for the position, though I secured it at 19 years old with only partial college experience.

I have paid for my own medical bills throughout pregnancy with only limited help from my father for some unexpected bloodwork in early pregnancy.

I am financially independent. Danny and I pay our own rent, utilities, food expenses, car payment, and school expenses. Danny is paying his way through his undergraduate education independently, without the financial assistance of family members. Danny works full time during the summer. During the academic year, he will work 25 to 30 hours while also taking 18 units for this fall quarter and still maintaining a full-time student standing throughout the school year. Also, he is currently taking two summer school classes and will begin another in August. While working full time. While caring for a new baby, born just 8 days ago, and adjusting to life as a father.

He is doing so without complaint, and in fact, is excelling in all areas he has extended himself into. He is a natural caregiver. He juggles his many responsibilities with more grace and seamlessness than men years his senior.

We will be legally married when it is more financially feasible for us to do so. We find it more responsible and appropriate to care for our current expenses and the needs of our child rather than plan a wedding, a celebration of two people coming together as one; yes, an undoubtedly significant and sacred event for a couple, but, ultimately, just one day in the journey of a couple as man and wife.

The true definition of marriage is a spiritual union, a commitment to God first and foremost, an unending devotion to fidelity, a continued decision to sacrifice each day for the needs of a spouse, an inseparable bond of friendship and accountability to each other in faith and action, and a constant striving to further the work of God here for our short visit here on earth in a partnership with our spouse.

No, we are not legally married, no, our child is not "legitimate", but we are legitimately committed to God, each other, and the needs of our child.
We do not need a piece of paper to assure us that God has given us Charlotte as a blessing, as a mark of His grace, and as a reminder of the beauty of Christ's promise in such a dark world.

We know that we are capable of raising a healthy child in every sense of the word. We know that we must now set our own needs aside for the sake of our child. We know that we are more qualified than some married adults to enter into parenthood. We know that we have much to learn. We know that we will only raise our child and grow together as a family with our eyes on Christ, acknowledging our faults, but rejoicing in the assurance that we are loved by Him.

To look at my child, her aunts and uncles, her grandparents, and her numerous friends and other family and to see sinfulness, parental irresponsibility, illegitimate birth status, or an embodiment of debauchery or immorality is a disgusting perspective to possess on such an innocent child.

My words are not for myself, but rather, for my daughter, who I am honored to be the mother of. I would be doing her a disservice to passively acquiesce to the ignorance or the brash, unfounded assumptions of complete strangers.

I speak out now because I love my child, my fiance, and my family. I speak out in humility to assert my utmost resoluteness that I am a capable, loving mother and that Danny is a capable, loving father.
I speak out because I have self-worth, a self worth that I hope I can one day teach my daughter."

"For You created my innermost being; You knit me together in my mother's womb. I praise you for I am fearfully and wonderfully made; Your works are wonderful, I know that full well." Psalm 139 13-14

Friday, July 17, 2009

Grandchildren are God's way of compensating us for growing old. ~Mary H. Waldrip










My little side kick and I are back from our trip to La Jolla. We spent the remainder of the week with Caitlin, Danny and precious little Charlie. We finagled an invite under the guise of "helping." Well, that is not entirely true. They wanted us to stay but the helping part ... that was my intention, however, they hardly needed my help. Caitlin and Danny are already amazing parents. No exaggeration. Very little rattles them and they are embracing every,single, solitary aspect of parenthood. They are a fabulous team and Charlie certainly completes them. As for Charlie, what can I say except that she is perfect. Just beautiful. She has taken to nursing effortlessly. So much so, that she came home on Monday weighing 6lbs.10oz and today, at her follow up appointment, she was 7lbs 8 1/2ounces! What a little porker. The McAuliffe family of three are going to do just fine. More then fine. They are and will be magnificent. We all wish we were closer in distance but something tells me we will be taking alot of road trips in the future. And Miss Zoey, she was such a trooper. Laid back as usual. Adapted to her porta-crib and the change to her daily routine with no problem whatsoever. She did have an off day on Thursday though. I was concerned something was really off. My mind goes to crazy places whenever she is not herself. I do not think I will ever not go to those places with this child. Ever. Poor little love, cried for an entire hour straight in the late afternoon and, the thing is, Zoey NEVER cries. I still am not sure what was up but today she seemed more like her happy little self again. The week also proved to be a real growth spurt for her as well. Not physically but on a cognitive level. As I told you and now you can see for yourself in this little video, she signs baby like crazy. She claps in her modified way. She puts her hand and pinky up for I love you. She places her hand on her head for daddy and a few times repeated the sign, or her version of, thank you. Mind you, these are all prompted but she is at least doing a really fantastic job of imitating. Some signs will end up being modified versions of some kind or another due to the absence of use of her left hand. So, to me, considering all that Zoey has been through, this stuff is truly mind blowing to watch evolve. Mark and the boys came down late yesterday to get us. They went to the beach with Danny until into the evening and then we had a late dinner on our last night together. Perfect ending to a perfect week. A week just enjoying each others company. We had a blast watching Zoey doing her thing. I savored each moment with my little grandbaby and marveled as I watched my amazing daughter step into this next chapter of her life with such grace and beauty. Love you Caitlin and Danny. We are so, so very proud of you.

*If you want to watch the video of Zoey, don't forget to scroll down and pause the blog music.

Monday, July 13, 2009

How Dare Someone ...

This is an add on to the post you will find below.Mark and I stayed up until 2 in the morning adding these pictures for our family and friends.Before we headed to bed Mark checked previous comments.We were shocked beyond belief to find the most filthy,vile comments left by a cowardly,anonymous poster.Who,in their right mind comes in to some one's sacred place and says hurtful and HATEFUL words.Who???Someone sick and sad and very lonely.I will not dignify or give this person the time of day to address all the specifics but I would like to clarify a few things.First,these are NOT teenagers.You don't know them so do not make an uneducated assumption like that.And to attack my parenting really confirms you do not know myself or my husband.We are not perfect but we are good parents with the most amazing children.We are not on welfare nor are our children and more specifically neither are Danny and Caitlin.The "system" does not pay for them or their beautiful child.THEY do.As for your sick other comments ... get some help.You have some serious deviant problems.So to my family and friends,unfortunately,to protect my family,I must now set my comments to moderation.We will have to view each and every comment before it is posted.I apologize that one twisted individual had to ruin the way we run this blog.Sad and extremely sick.

Sunday, July 12, 2009

A New Chapter Continues .....



















So much to tell about our time down here over the last few days but at this hour I wouldn't even know where to begin. Instead I will just leave you mostly with pictures.Besides sometimes pictures tell the best story of all.First and foremost, we are all madly in love with this new little life already. The boys are enamoured with her. Gentle and protective.As for Miss Zoey,well,she wasn't exactly sure what to think of Charlotte at first. Zoey would touch her really quick and then turn away just as quickly,accompanied with a most disgusted look on her face. We all were cracking up. By this evening she made her way over to Charlie's little seat lickity split and was rather interested in her. The big news, the really big news, is that Zoey has done her first sign. The background is this: Before we left the house on Friday, Taylor was sitting on the livingroom floor with Zoey. Taylor was talking to her and saying,"Is Caitlin having a baby?",and Taylor would do the sign for baby. Without Taylor placing Zoeys arms together,Zoey did it herself and we were like,no way.Just coindcidence. But Zoey continued to do it each and everytime we said,"Zoey can you say baby?" Once we got down here to La Jolla, we just kept reinforcing "baby" with her, showing Zoey Charlotte and now it's official,Zoey signs baby! We will say, "Zoey, where's the baby?" Zoey will put her arms together and sign baby. This is HUGE. Besides the fact that she is really making a connection with a word and using her body to sign, she is also placing her TWO arms/hands together. For Zoey, who has left side disregard/paralysis, she seldom, if ever brings her two hands together for anything. She is unable to purposefully use her left hand and arm and to see this gives us such hope that one day her left hand will at the very least be a really great helping hand to her other. When she does the sign for baby she also follows it with blowing a kiss almost everytime.So darn cute. This child amazes us all each and every single day.

Charlotte is beautiful. She has changed even since Friday.Most importantly ,Charlie is home.Right where she belongs with her mommy and daddy. Danny and Caitlin are so at ease and we are so proud of the two of them for how calm, cool and collected they are. Well, that was more then I had originally intended but I just had to share the Zoey story. More to follow .....

Friday, July 10, 2009

Announcing The Arrival of ......












the very precious,the very perfect, the very beautiful ..... Charlotte Claire McAuliffe.
Charlotte,Charlie for short,made her miraculous entry into this world at 1:56 pm weighing 7 lbs 1 oz and measuring 20 inches.She arrived quickly.Very.Almost missed it.Caitlin had her water broken at 9am and went from 3 1/2 cm to 9 cm in a mere 2 1/2 hours.We arrived at 12:45,Caitlin began pushing at 1:20 and that was that.I was blessed to be in there.As was Danny's mom.What an incredible experience to be there at the birth of your grandchild.Indescribable.Caitlin and Danny did an amazing job.As if they were seasoned veterans.Very emotional and very moving.So that is that.Except not really.From here, a new chapter.A new life.A new beginning for the Needham/McAuliffe families.Thank you for all of your love and support and prayers.Thank you for continuing on with us on this next magnificent leg of our journey.More pictures to follow,soon!