tag:blogger.com,1999:blog-4997156159638877174.post4699064845297115756..comments2023-09-26T00:25:51.171-07:00Comments on Little Wonders: Frustrating ...Heatherhttp://www.blogger.com/profile/04209967185741239050noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-4997156159638877174.post-45985378010000085242009-02-24T22:12:00.000-08:002009-02-24T22:12:00.000-08:00Happy early birthday Zoey! You're always in my pr...Happy early birthday Zoey! You're always in my prayers. Have a great (and healthy) week!Maryhttps://www.blogger.com/profile/13467859467559900843noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-56895305743074590122009-02-24T17:08:00.000-08:002009-02-24T17:08:00.000-08:00Hi there...I found you through Michelle's blog. I ...Hi there...I found you through Michelle's blog. I am also the mamma of a little girl with Down Syndrome (about the same age as your Zoe). We have been so blessed to have no health problems with her, but in our Early Intervention group (6 babies all born with Down Syndrome within 3 months of each other, within the same 2 days...) we have had the rounds of issues. One of our little friends is just heading in for round 1 of chemo. I wish that the tiny people didn't have to deal with this.<BR/><BR/>Your daughter is beautiful (that HAIR!!!). Granted it is not a great birthday present, but we will add her to our list of friends to keep in our prayers and thoughts.Bekhttps://www.blogger.com/profile/02421106490759593190noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-6545998905747821942009-02-24T16:23:00.000-08:002009-02-24T16:23:00.000-08:00I know what you mean...frustrating has been my wor...I know what you mean...frustrating has been my word of choice for sometime now! I'm sorry you couldn't get round 4 underway sooner, but I'm sure you will find a way to enjoy your extra week at home. Thanks for listening to me and my ramblings...you are truly a great friend! Give that sweetpea some love!<BR/>TeraReagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-67982097733846890922009-02-24T14:37:00.000-08:002009-02-24T14:37:00.000-08:00I hear you on the lab anxiety -- do you think that...I hear you on the lab anxiety -- do you think that's in the medical text books... it should be!<BR/><BR/>Thanks for praying for us in the middle of your own storm.Karen Owenshttps://www.blogger.com/profile/09476556332417930216noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-36195733999746357102009-02-24T13:00:00.000-08:002009-02-24T13:00:00.000-08:00SHeesh! YOu had to tell me she was suppossed to ar...SHeesh! YOu had to tell me she was suppossed to arrive on the 7th didn't you! LOL! Now i have to do it! Kidding! I might see how much they need to make the wigs, and cut that much off! Thanks for stopping by my blog and commenting me back! It means a lot! I follow a few cuties and I LOVE to hear back! Best wishes! Im praying for your Zoey....the rest of the fam too! *erin*MJMILLShttps://www.blogger.com/profile/08055250038773087388noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-86404420854889486442009-02-24T11:19:00.000-08:002009-02-24T11:19:00.000-08:00My sweet Heather, would you send me your address v...My sweet Heather, would you send me your address via email? I have something for you, and for Miss Z´s birthday!!!!!<BR/><BR/>I really hope that you can start with the next round soon, I can imagine it is so hard to just WAIT. Now, maybe you can see it from that point of view as Michelle mentioned. Enjoy the time that is given. If possible ;-)<BR/><BR/>Hugs fronm here straight to you!Claudiahttps://www.blogger.com/profile/16954761345803576676noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-68004935150452563782009-02-24T03:54:00.000-08:002009-02-24T03:54:00.000-08:00Well, I sort of expected you would be home again. ...Well, I sort of expected you would be home again. Zoey is following her usual pattern (3 weeks) I can just imagine your frustration when you were informed her count now has to 1000 instead of 750 as in the past. Too bad you were not informed....Another "umm" misinformation from the medical world. <BR/><BR/>But..... on the plus side - you're all home for another week...and just maybe.... Zoey will get to celebrate her two years at home! Only time will tell - in the meantime, enjoy the days at home - and Heather.....it's okay to take a nap when Zoey does. <BR/><BR/>Hugs to everyone<BR/><BR/>BluebelleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-66153056612032590112009-02-24T01:47:00.000-08:002009-02-24T01:47:00.000-08:00Oh, little Miss Zoey will be turning 2!!! What a ...Oh, little Miss Zoey will be turning 2!!! What a fight she has put up her first 2 precious years of life...she is an amazing child. I will keep Zoey in my prayers that Round 4 will start next Monday. I can only imagine the anxiousness you must feel to have all of this behind you.Sophie's Story by Elainehttps://www.blogger.com/profile/00415731740298071423noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-69781557362892805502009-02-23T21:57:00.000-08:002009-02-23T21:57:00.000-08:00My dear, sweet friend...A birthday is to celebrate...My dear, sweet friend...<BR/>A birthday is to celebrate life and what a better way to celebrate the sweet life she has been given then to be at the one place that can give it back to her. Perspective...I have learned...it's all about the way we see it. It's that dang control thing...another realization that we never do have it, do we! :) It will all be here and you will be in the middle of it soon enough. Enjoy the sunshine, listen to the music, dance with Zoey...and pray my friend...I will be praying with you...always!Michellehttps://www.blogger.com/profile/00178966273762200571noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-20635192864690160072009-02-23T21:02:00.000-08:002009-02-23T21:02:00.000-08:00Heather- Sorry I haven't been by lately. Life has ...Heather- Sorry I haven't been by lately. Life has been a bit hectic in my part of the world lately. I've been catching up on your blog. Lots of goings on. I love Zoey's hair in the piggy tails!! She is just doing so well!! Always know that prayers and support are coming your way. I am very excited about Princess Zoey's birthday next week!! Let the celebration begin!! Hugs to you..xoxoxoKristyhttps://www.blogger.com/profile/08885790231178546346noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-64226425381472113992009-02-23T19:41:00.000-08:002009-02-23T19:41:00.000-08:00Sorry that life can be so frustruating!!! Try to ...Sorry that life can be so frustruating!!! Try to have a great week at home! I'll be thinking of you and praying for you and Zoey! I can only imagine how stressful this must be for you, but remeber that God's timing is always better than our own! Hugs!!!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-26647577436274516682009-02-23T18:59:00.000-08:002009-02-23T18:59:00.000-08:00Totally normal to be frustrated AND anxious! Alth...Totally normal to be frustrated AND anxious! Although it sucks starting on her birthday, just think, you can have an awesome party the weekend before, and her counts will be really strong by then. You won't have to be freakish about all the kids being there, and they're boyfriends etc. You'll have a blast! <BR/><BR/>Also, Chelsea's HGB is always high too. Isn't it weird? She's usually in the 14's. Someone once told me it's suspected to be associated with sleep apnea (which we 're sure Chelsea has). I asked our oncologist about it and she said no, but she doesn't know everything about Ds, so I take it with a grain of salt. <BR/><BR/>Good luck and enjoy your extra week!Careyhttps://www.blogger.com/profile/01399597037132075637noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-50314807220770523412009-02-23T18:54:00.000-08:002009-02-23T18:54:00.000-08:00I just might shave my head on march 7th in honor a...I just might shave my head on march 7th in honor and support of children with cancer. Im in Las Vegas where they hold this particular event. Man am I scared, but Zoey has inspired me to really think about doing this for Locks of Love! SHould I??? Oh man Iam scared!MJMILLShttps://www.blogger.com/profile/08055250038773087388noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-78770634562131817972009-02-23T16:37:00.000-08:002009-02-23T16:37:00.000-08:00Zoey will be the Birthday Princess no matter where...Zoey will be the Birthday Princess no matter where. Prayers for Zoey and her family and friends all of the time, xo Christi HarmanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-75688734655104862362009-02-23T14:55:00.000-08:002009-02-23T14:55:00.000-08:00HMMM, does that mean you just might have time for ...HMMM, does that mean you just might have time for a pedicure this week????JUST A MOMhttps://www.blogger.com/profile/02524391819288154189noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-34889562114455384142009-02-23T12:27:00.000-08:002009-02-23T12:27:00.000-08:00Praying you can get this started so you can get it...Praying you can get this started so you can get itover with. If you have a medically needy child, you forget about birthdays and holidays. I think we've spent every holiday in the hospital at least once.Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.com