tag:blogger.com,1999:blog-4997156159638877174.post7747162853150851328..comments2023-09-26T00:25:51.171-07:00Comments on Little Wonders: iPad, wheelchair, milk allergy and MRSA update ...Heatherhttp://www.blogger.com/profile/04209967185741239050noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-4997156159638877174.post-4625755192903255842011-07-01T08:25:12.187-07:002011-07-01T08:25:12.187-07:00The picture of Charlotte and the gtube is hilariou...The picture of Charlotte and the gtube is hilarious!<br /><br />Glad the MRSA is clearing up. Hope Zoey is 100% better by the time I finally get caught up on your blog. <br /><br />I hope you have the wheelchair and iPad by now and are enjoying both of them.Melissahttps://www.blogger.com/profile/06474584473012742915noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-2920835172700322732011-06-21T18:53:38.829-07:002011-06-21T18:53:38.829-07:00Oh, my goodness, Charlotte and the feeding tube!! ...Oh, my goodness, Charlotte and the feeding tube!! What a precious picture. It should be entered into some kind of contest! So adorable. <br /><br />Does Ella have diarrhea with the yogurt, or other GI stuff like bloating? I could sometimes give Mallorie a little bit of a REALLY good yogurt - ie, having good cultures in it - and she could tolerate it. She was was EXTREMELY milk intolerant. But I think the milk had to be broken down well by the yogurt bacteria for her to take it without reacting badly, so I stuck with brands that boasted a few (live) cultures. The best ever thing we found was kefir ... best (and cheapest) is to get the "grains" so you can make it yourself from milk, instead of having to buy commercial kefir. We even made it daily during one hospitalization right in the hospital room, from milk that came on the breakfast trays. It's really easy to do, and the cultures (bacteria, yeasts) break down the milk to something that is more likely to be tolerated. Of course, Mallorie seemed to have a milk "intolerance" and not a true allergy, so if Zoey tested as allergic, maybe that won't work as well for her. But if she could tolerate it, the probiotics in kefir are really good for immunity, and after I read the results of a study that used (commercial) kefir to treat c-diff infections, we used it to cure her of a really bad and recurrent c-diff infection. I swear, I really think this stuff was given to Adam in the garden, and he was told to keep using it and to pass it on to his children, for their health (and to preserve milk, too). :)conniehttps://www.blogger.com/profile/08675708151247378703noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-4188255055856107512011-06-16T18:21:00.917-07:002011-06-16T18:21:00.917-07:00I am so thankful that Zoey's eye is healing on...I am so thankful that Zoey's eye is healing on its own, and praying that the nasty MRSA stays away for a good long time (forever would be nice!). Wheelchair vendors must take some sort of training in how to screw with their customers because I have yet to work with a company, as a teacher or a patient, that does not have major issues. Good for you for telling them exactly what needed to be done and when!! I love the photo of Charlotte wanting to be like Zoey and hooking up her own "g tube" :) Too precious!! Could Zoey try soy yogurt or is she allergic to soy? Whe is still cute as ever, even with her hives!!Bethanyhttps://www.blogger.com/profile/03739014153757925986noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-40734642818367193882011-06-16T14:46:54.001-07:002011-06-16T14:46:54.001-07:00FYI: My girls would break out in a rash on their ...FYI: My girls would break out in a rash on their face while they were eating ranch dressing. They grew out of it..Maybe Zoey is just having a reaction. Hope she gets her wheelchair ASAP...We miss Zoey videos...<br /><br />The Steelman GirlsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-91144140655961328672011-06-14T18:22:38.354-07:002011-06-14T18:22:38.354-07:00WRT to the yogurt - make sure it's not the fla...WRT to the yogurt - make sure it's not the flavor she's reacting to. Bridget loved all those high-fat yogurts... but the strawberry one made her face all puffy and red. Now she can eat strawberries just fine, but at the time (7 or 8 months) that particular flavor made her break out.<br /><br />Glad the MRSA is better!Maureenhttps://www.blogger.com/profile/00394242080615391959noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-16756990782194097392011-06-14T13:05:42.138-07:002011-06-14T13:05:42.138-07:00Well, well - it's off to the beach the Needham...Well, well - it's off to the beach the Needham's will go. Summer is here! Glad to hear MYRSA issue is better, hiss boo to the possible milk allergy and yipee for the upcoming wheelchair (otherwise known as Miss Z's little pink rod) and I-Pod.<br /><br />Hope you enjoyed the beach today.<br /><br />Aunt Bluebelle<br /><br />- Love, Love Charlotte trying to use "Aunt" Zoey's G-tube to feed herself. What fun it must be to have her with you Great photo!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-9503463789105750202011-06-14T13:00:05.053-07:002011-06-14T13:00:05.053-07:00Love hearing updates about Zoey, she's such a ...Love hearing updates about Zoey, she's such a cutie! My daughter had an intolerence to milk and grew out of it by about 4 or 5.But she also had sensitive skin and fruit juice made her break out in red splotches if it touched her skin. Oranges, strawberries anything the least bit acidic. So was the yogurt mixed with anything that could cause a rash?csmithhttps://www.blogger.com/profile/04439615092702553284noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-67364359819355924962011-06-14T12:36:25.703-07:002011-06-14T12:36:25.703-07:00I wish I had an answer for you with regards to the...I wish I had an answer for you with regards to the milk allergy. I'd love to hear if you ever find out more on if that is a sign. Sweet Pea had something like that once recently and we have been trying new things a lot so I really should pay more attention!Sweet Pea's Mommyhttps://www.blogger.com/profile/04865365312620255005noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-79752617797684274362011-06-14T09:39:48.960-07:002011-06-14T09:39:48.960-07:00You are the second person I've noticed that go...You are the second person I've noticed that got an IPad from Marissa's Bunny! So did Grace!! That's so fun to see just how small our world is.Amandahttps://www.blogger.com/profile/16639501250753540422noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-12677595499273933972011-06-14T08:54:39.776-07:002011-06-14T08:54:39.776-07:00Ah to the end of MRSA.... what I was wishing for.....Ah to the end of MRSA.... what I was wishing for.. savor it! hope the milk rxn goes away and never returns, but I agree that with all the goings on a rest is needed. I have a great article from my son's old principal on the Importance of experiencing "boredom" in childhood and having no one "fix" it for you... when I find it, i'll scan and send!Happy summer... beach weather here in CT. too but the kids are still in school because of all the snow days... yeah!colleenhttps://www.blogger.com/profile/13329067973795030839noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-73445194059545557122011-06-14T08:22:09.925-07:002011-06-14T08:22:09.925-07:00I am glad Zoey Grace will be getting her much need...I am glad Zoey Grace will be getting her much needed wheel chair soon and her iPad, both are awesome and I can't wait to see her use both!<br /><br />I am also happy she is getting better with the whole eye issue,<br /><br />Have a wonderful summer, or try to, today it is overcast!Melanihttps://www.blogger.com/profile/04167151300858497228noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-73088917294128718642011-06-13T21:32:28.231-07:002011-06-13T21:32:28.231-07:00Glad Zoey's on the mend. Have fun at the beach...Glad Zoey's on the mend. Have fun at the beach!Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-9368325132517218112011-06-13T18:54:04.150-07:002011-06-13T18:54:04.150-07:00Speaking to the comment about it being hard to nav...Speaking to the comment about it being hard to navigate a chair with one hand...<br /><br />I have a client who has CP...she has limited head and neck control (barely can speak) and control of ONE finger. ONE. <br /><br />She navigates her chair on and off the bus, on her way to work, where she uses her chair to support her "eye tracker" speaking device (she moves her eyes to select the words and phrases she wants the computer to say for her. After work she gets herself back on the bus, usually stop by her friends restaurant for dinner and a drink, and then goes home. To her OWN apartment. <br /><br />She has the support of an attendant at night who helps get her in and out of bed at night and in the morning. <br /><br />So...just a (way too long, I'm sorry) story about the possibilities that exist. <br /><br />Much love!<br /><br />Brooke Annessa<br />www.theannessafamily.blogspot.com<br /><br />PS: Can she have soy? Coconut? They make a GREAT coconut milk yogurt with LOTS of calories :)The Annessa Familyhttps://www.blogger.com/profile/11929967116411498173noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-37227102844055773972011-06-13T18:51:11.835-07:002011-06-13T18:51:11.835-07:00You know we'll be there for some of those beac...You know we'll be there for some of those beach days this summer! And next summer, we won't miss one! My way to spend the summer. I can't wait to be close to the beach. I love sweet Char trying to feed herself with a toobie. What a smart cookie!Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-43363817980486701662011-06-13T17:11:12.079-07:002011-06-13T17:11:12.079-07:00Hate reading wheelchair horror stories. All too c...Hate reading wheelchair horror stories. All too common. Will celebrate with you when it arrives! <br />BarbaraBarbarahttp://www.therextras.comnoreply@blogger.comtag:blogger.com,1999:blog-4997156159638877174.post-74813373635952912612011-06-13T16:45:43.617-07:002011-06-13T16:45:43.617-07:00I'm relieved to hear that Zoey is doing a bit ...I'm relieved to hear that Zoey is doing a bit better and sorry to hear that you might have been premature with the milk allergy thing. :(<br /><br />I think we need to plan a family beach trip -- what beach do you go to?Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.com