Tuesday, October 28, 2008

A New Normal Begins ....

It's a little before midnight and I had hoped to be in bed by now but there is just so much to get done.We head out tomorrow at 5am for Zoey's bone marrow biopsy.The exact time of the procedure is around 7am.She will go under general anesthesia and hopefully will be in recovery before we know it.From there it will be a waiting game.We will hold tight for a few hours and then we head to her hematology/oncology doctor.I have always referred to him with both titles but I suppose now he will be known as Zoey's oncologist.I really hate that.In between the biopsy and when we reconvene with the doctor, we head to cardiology for a echo cardiogram and chest xray.I called her cardiologist on her cell phone.Yes,she gives me her cell phone,which she personally answers.Is that crazy and wonderful or what?She figures they will want to know her heart function before treatment starts so we will be squeaked into her schedule.The beauty of people who surrounds us has more then shown itself already.The day has been crazy.So many things to try and get in order but actually, we have no idea what exactly to get in order for.The kids well,they are doing alright.The big girls wish they could just swoop in and take charge of the boys.They will do what they can but reality is,life for them, has to continue forward.Emotionally we have been all over the map.Some moments find us repeated the news with strength and forthrightness.Other times,I choke on the words.Now becomes the real test of living moment to moment and giving complete control over to God.Again.As for Zoey,she has been relatively happy.Smiles but she is tired.You can see it in her.The biggest thing you see is how pale she is.I hadn't really notice until yesterday.With all her numbers off a little,it's no wonder.I wish I had something else to share.Like it's all been some big mistake.I have rode the elevator at Children's,with Zoey,on and off for the last 20 months.We have been on every floor except the 4th.The cancer floor.No other way to say it.I have been known,when the elevator has stopped at the 4th floor to whisper to Zoey,"Baby girl we don't want to get off here,Ever."However,tomorrow, I fear that will be our stop.I will walk through those doors and our new normal will begin.I will post tomorrow.We thank you all from the bottom of our hearts, for the love and out pouring of support that we have already experienced.Amazing.Simply amazing.Keep those prayers coming.They will sustain us.Also,if anyone knows how to make a "button" for us to post for people to link to Zoey and post on their blog,could you please email me.I don't have the energy to explore it right now.I am off to finish packing and catch a few hours of sleep.Until tomorrow ....

13 comments:

Cheri said...

We'll be praying for you.

Check your email...I don't know how to make a button unfortunately but I found something on the internet I waned you to see.

Alison said...

Heather-
It is just now 5am and you are leaving for CHLA. We are praying for you throughout the day...and those that will follow.

Our love,
Mike and Alison

chey said...

Zoey,
Keep that warrior spirit. Be brave and strong and know how much we all love you! Your fight is our fight too! Keep flashing those smiles to mom and dad!

All our love,
Curt,Danette & family.

Larkinsmom said...

Zoey girl you and Larkin humble your mothers but what you don't know is that WE NEED you. So Zoey I am praying for your strength, courage and healing. I need you and I need your mom.

Mommy - I am right here - you have my digits and prayers. Keep the faith because thru God all things are possible.

Reagan Leigh said...

Constant prayers coming from Texas! Too bad you don't drink coffee...I bet you could use an extra boost today! I pray that God will give you everything you need to make it through today and the days that follow.
Tera

Carey said...

I can't stop thinking of you all this morning. I'm praying, for what I'm not sure. For her miracle, her strength, and courage for all of you. It was great to hear your voice yesterday. I wish I had caller ID, but I don't, so if you don't mind and you get some down time (no hurry), email me your phone number. I'll be checking for updates all day. Hugs to miss Zoey, I'm sure she's coming out of the sedation already, and I hope the biopsy went well.

Aunt Kim said...

Heather--Kele's sister here. I have some of my staffers, who are in their 20's and are brilliant with the computers and all that that entails, trying to figure out how to create a Zoey button for you. If we get something I will email to you. Stopping several times today to pray and send many, many positive thoughts to you and Zoey today.

Kim

Kelly said...

Heather, I asked one of the sweet moms from RR to make you a button for Zoey. She already did it. I sent all of the info to your e-mail. Praying for you guys today.

kristyc said...

Thinking and praying for you and Zoey.

Evalena's Mom said...

Heather,
We're sending prayers your way for Zoey and all of you. You have an amazing family and faith. We look forward to reading more about Zoey and this hurdle she'll clear without a problem.
Kathleen, John and Evy

Kele said...

All I can say is I love you guys. All of you. Taylor, you and your sisters make me so proud to know you guys! You are such an amazing big sister and talking to you today makes me realize even MORE that you guys are going to get through this!!
Heather, don't even think about changing your cell phone number cause you tire of my constant calling...
And as I have said before and will say every day until this is all done...
ZOEY WILL BEAT THIS!!

Shari said...

I will definitely be praying for you! I will continue checking in if it's OK.

Anonymous said...

Zoey, Jacquie and Christi send strength love and prayers, hugs and kisses too. Remember, you are "soooo big". Tell your mom, dad, brothers, and sisters that we are thinking of you all and you all are in our hearts. Lots and lots of love.