Sunday, January 25, 2009

"A human life is a story told by God"~Hans Christian Anderson

Getting late here at CHLA.I don't usually post when I am here but Mark left his computer today for me and I thought I'd do a quick post.No pictures today.I forgot the camera.I will try and capture a few tomorrow.Taylor is heading down for a visit and she will bring it along.Today was one of those days where the morning seems as if it was an entirely different day.Lots of reasons why it dragged but all too difficult to go into this late.I'd want to do it justice but this hour would never lend itself to that.Instead I'll talk about Miss Zoey.She appears to be holding her own.More than her own really.Slightly less crabby but stubborn as all getup.She was unhooked from her hydration so she is line free.Makes her moving around a bit less stressful.I worry she will yank her main line out and trust me,that would not be good.We circled the floor countless times today.A change of scenery seems to help her moods.She loves to people watch and the more hustle and bustle the better for her.Hard to believe she hasn't really been in the sunshine since October.Time seems to be passing quickly.For which I am extremely thankful for.We have a darling little roommate.Full of spunk and energy despite the circumstance.Zoey enjoys her activity level and when her little sister is here,Zoey tries desperately to peer behind the curtain,hoping to catch a glimpse of the goings on.Her nausea seems to have subsided so we have discontinued her Zofran and now ... the wait.Platelets are already dropping ..fast and the rest are following.The week is sure to bring a transfusion or two.Just a given.So we wait.And we pray.And we wait some more.And we pray even harder.This round has a different tempo to it.Hard to explain why.Not so much from a medical standpoint but primarily from an emotional side.But we move forward.At a pace set only by Zoey.She leads and we follow and for this day,today,she is doing great.Today,I hold my child and am thankful for this moment.Today I give thanks for the gift of right now.Today my heart is heavy and I wonder why it is that once again my reminder of the beauty of this day comes at the expense of a life so very young.For today,even in this room,along these corridors,on this floor, there is reason for gratitude.Hug your children.Kiss them endlessly.Rejoice in your moments.Laugh with one another.And most importantly,love one another.Honor these precious stories told by God ....by living fully and completely in all your moments.

10 comments:

The VW's said...

Praying, praying, praying...for Zoey and You! May God give you strength and peace to endure each day. Thanks for the reminder to live each day to the fullest and to hug our little ones tight!

Lacey said...

Zoey will lead the way and she will do great. We are praying extra hard right now, and hugging our little warriors.

Melani said...

I follow your blog and you and Zoey are precious as is your entire family! Your a strong woman! I pray for your princess. Your words always touch me, so for that I thank you!

Anonymous said...

Thank you for posting Heather, even though you are likely tired to the bone. Perhaps this round has a different emotional tempo to it because you'd like to get out of there more and more. Zoey is doing great and that is such a comfort. Love and prayers and hopes for the good numbers to come quickly. xo Christi Harman

Anonymous said...

Hang in there Zoey. God is watching over you. Remember not even a bird falls to the ground that he does not see.

SammyJo said...

I follow your blog (being a "virtual friend" of Claudia), keeping my fingers crossed and praying for gorgeous little Zoey. But at least equal stunning are you, Heather!

You walk along the hospital corridor with you very sick child and feel - nevertheless! - GRATITUDE. How BIG is that?

Reading that, I feel so small. How come you have such supernatural power? AMAZING.

All my very best to you & your family - Alex

Mia hat eins mehr said...

I totally understand your feelings. It`s just like you hold your child in your arm and suddenly you realize how precious everything is maybe? Actually, when I thought of Mia lately I just had to tell everybody who crossed my way that day how much I like them and how thankful I am (to most of them) that they walk a little with me. I never had those feelings before our hospital time. It was just like it opened my eyes to the what`s really important in life. Why do we have to suffer like this just to realize? Prayers for you, my friend.

Michelle said...

I am looking outside at the newly fallen snow...a whole foot of it...it is soft looking, beautiful and white...very pure. Reminds me our our angels. Look to the future and year or 2 from now when you can bring the whole fam our way and enjoy some of that freshly fallen snow! Keep looking forward my friend and know you are loved! kIsses to zoey!

just jean said...

It has become a common thing for Zoey to enter my thinking....a song on the radio....everyday, checking your blog....and last Sunday, at Mass, when the homily was about guarding against "sleepwalking" through life. The priest told a story of a young child (about Zoey's age) who entered his life, needing human warmth and security. It was a sad story of violence and fear. This little child just needed someone to be there...just to be there in the moment....and that is what we are meant to do. Be awake to the moment, and not sleepwalk. So many lessons to learn from such little warriors. Thanks to you and Zoey for sharing your lessons of life.

Kele said...

Wise words and great reminders, thank you.
Kiss the Warrior for me!