Wednesday, May 27, 2009

Time ....






... it seems to being going at warp speed.Hard to believe, when life primarily consists of sitting,sitting and sitting some more,in a hospital room all day long.We are rapidly approaching the 4 week mark inpatient.They said 4-6 weeks and I guess they knew what they were talking about once again.My mind is spinning.I am pulled in so many different directions.I sit to blog and I have a million different topics I want to address but do not have the time,space or ability to sort them out,to make any sense.I have unanswered emails.Beautiful comments left here to reply to.High school graduation to prepare for.New grand baby to make way for.Friendships neglected.Relationships in need of repair.5 other children who need me on vastly different levels and oh yeah,a husband,that come Saturday,I will have been married to for 22 years.And ... I have only scratched the surface here folks.Conclusion:I am running on fumes.Light vapors barely sustaining me.But,I flip that autopilot switch on daily and go.Hoping and praying that I can put off hitting that wall that I KNOW looms somewhere in the not so distant future.So tonight,instead of touching on one of the aforementioned topics,I am choosing to avoid and just post once again on Miss Zoey.She seems the least complicated of choices right now,believe it or not.What has Wednesday brought us?Number one,a VERY pale Zoey.I mean seriously pale.Can you say,transfusion?Yes that will be on the agenda tomorrow.Platelets lower but leveling off hopefully and white count is up by a little.Still no ANC and still probably going to fake us out with an increase than decrease than increase,over the next few days.The good thing is that they have decided to draw labs daily so we can watch for trends.Zoey's spirits are the best that I have seen in days and days.She is charming the masses at CHLA and she keeps me smiling absolutely nonstop.Speaking of stop,I better stop now.Tired and sore from my evening runs and still,at 12:30 am,a few more things to be done around here.Prayers for an increase in numbers tomorrow please,as I am going stir crazy in 409B and so want to bring my baby home.Where she belongs.

*We have been so very blessed to have met not one,not two,not three but FOUR of our blogging buddies.First there was the very handsome Reid.Let me tell you,that boy is to die for.Then came our buddy Jax and his amazing family.Lacey and Ray are two incredible parents and as we sat on the floor that day I so wished they lived closer.A little over a week ago it was the darling Preslie and crew.Who,we felt in an absolute instant, as if we had known them forever.A side note shhh, don't tell anyone but they could possibly be moving here.Can you believe that?Jax and his family are talking about that as well ... how lucky would I be?Last but not least is the sweet Ella Grace and her equally sweet mom Denise who came up yesterday.Ella was born with the same transient leukemia as Zoey and the wacky world of blogging brought us together.Is that not amazing.These families took time out of their days,fought traffic,altered their family trips,after very long days on the road and still found their way down to CHLA to spend time with us.I cannot begin to tell you how much all of these families and their beautiful children have come to mean to us.Thank you is insufficient.We love you all.

18 comments:

Anonymous said...

First and foremost - Happy Anniversary to you and Mark - it doesn't seem possible it's been 22 years! Seems like we were just sitting around the bon fires laughing at jokes..... And of course we here in Otisco are praying praying praying for Zoey and those numbers - come on little one - let's get you and mommy and daddy HOME!!

Robyn

stephanie said...

Oh, Heather how I wish more than anything you had the luxury to concentrate on all the wonderful and exciting happenings in your life right now. But, it will work out, God knows the importance of things, especially what's important to a Mother.Soon, this will pass and you will be able to tend to the needs of your family,have family dinners and lazy days together, you'll run by sunlight not moonlight.This is what I pray for, for you. This is what I see. Stay strong, I love you dearly, Steph

ABandCsMom said...

Happy Anniversary!

We continue to pray for Zoey. We pray her numbers will come up soon and get you all back home where you all belong.

Lacey said...

How nice that you get great visitors while sitting in a hospital room, thats a great way to break up the boredom.Praying extra hard right now that you have the energy to continue this fight. I know your sweet kids know that soon you will be home, its so hard when they have to be put on the backburner. I moved Jax surgery because I refuse to once again have my oldest's birthday ruined, nope, not going to do it.
But you know, I think I could sit in that hospital if I had Zoey to play with, I wish I was there and I would stay with her and give you and your hubby a much needed date for your anniversary. Love you guys, Lacey and Jax.

Cheri said...

Our visit to meet you and Zoey... will always be a cherished time for us! So fun to have pictures documenting the first time he met his bride to be and future mother-in-law.....oooh did I just write that?!?! :) :) Can't wait for you to break out of CHLA and document more fun times of our little loves getting to know one another.

Happy anniversary!!!! I hope you have at least a few brief hours to just be together... and to take in all that the last 22 years has brought...even if it means pizza and a glass of wine on the 4th floor!! Sometimes those are the most special anniversary celebrations. You have so much to celebrate!

Much love to you and your family!

Googsmom said...

{{{{HUGS ZOEY}}}} Continued Prayers for you all

sheree said...

oh mama! ((hugs)) to you. You are very inspiring!

Happy early anniversary to you and your hubby.

How fun that Zoey had all kinds of visitors...I love seeing those pics :)

Give that sweet girl a hug from Gabby and I.

Denise said...

For you Heather and Zoey, I would drive as far as I have to!! And I am sure I will drive farther the next time since Zoey will soon be out of that hospital forever!! Happy Anniversary!!

Anonymous said...

Big hugs for Zoey.

Kele said...

Yes, as usual you seem crazy busy! Glad to the pictures of all our lovely friends meeting up with you guys... I know that lifts the spirit like no other.
Take care and good to see the smiles on Zoey and to hear she is still in good spirits.

Anonymous said...

First off Congrats on your anniversary. So glad to hear Zoey is doing better. We will pray that her counts come up so that you can be done with all this and be home to enjoy her and the rest of her siblings grow.

Katie

Angela Grasso said...

Zoey is so beautiful !!!!! Those smiles melt my heart. Praying for her to be home soon...you guys are an inspiration to me everyday. She is strong because of you, mommys' have that special gift. You are unbelievable - keep your head up. She will beat this! Angi

scrappy quilter said...

Happy anniversary to you and Mark.

Continued prayers for Zoey and for you. I pray God will wrap a warm blanket around you and you'll be able to totally rest in Him over the next few days. He is all sufficient.

Zoey is such a delight. I so enjoy seeing pictures of her. Her smile is incredible has is her spirit. Hugs

the Hearnes said...

I'm following you, Heather... but, truthfully, you're one tough cookie to keep up with!! :) Seriously, I enjoy reading your blogs so much. Thank you for your recent emails and post on Thomas' website. Like you, I have so many unanswered emails on this new journey of ours, but I know that God has put so many compassionate friends who understand your focus.

You, Mark and Zoey are so close to your homecoming and we're praying for a smooth landing back to Camarillo. You will continue to be in our daily prayers for years and years and years to come.

Congrats to you and your entire family for making it to this point... what an accomplishment!

Love to you, my friend,
Tish

3saints said...

Oh Heather,

Hang in there...your the most amazing Momma. Happy Anniversary to you and your wonderful husband!

Hugs
Kate

Reagan Leigh said...

Happy Anniversary, Heather! I sure hope you and Mark get a little quality time together this weekend! Hopefully you and Zoey will be headed home for good soon! Hang in there and keep running!

sturpin said...

Heather, prayers for strength and clarity.

Anonymous said...

HAPPY ANNIVERSARY to such a wonderful, amazingly strong and inspiring twosome! Come on Zoey, we are cheering for you and more than that, praying earnestly for your numbers to be perfectly in line. Have been busy, busy with grad stuff. Love to all, Christi Harman