Saturday, May 22, 2010

Prayers for the "tiger-fly",formerly referred to as the "butterfly" ....



Although,the truth be known,she will always,always be the butterfly to me.

Sweet,sweet Presley fluttered into my life,my families life,back in July 2008.She was,at the time,in true Presley fashion,flaunting that feisty spirit of her's,on her way to an AV Canal repair.In-patient I might add and where she had been in-patient, since her birth at barely 28 weeks.Not a day at home,nor would she find home, till after her repair.But fight she did,successfully having that tiny heart made new and now officially and forever, part of the elite "zipper club".

And those months of prematurity,and months of her tiny lungs and tiny heart fighting each other,did not come without a price and so,now the little butterfly finds herself unfairly fighting again because of it.

I talked to Kele today,or rather texted, as not only is Miss P fragile right now,I fear so is her momma also.She was afraid if she talked she would not talk but rather cry her way through the conversation.

So tonight she has asked me to put out a plea for prayers for her little tigerfly/butterfly.

What do things look like right now?One sick little love.They originally thought it was bacterial pneumonia but have since identified it as viral.Which is a good thing as it helps them keep it more contained.They do however have her on a few big gun antibiotics to fend off any nasties lurking around.Presley has struggled with her blood pressure as well so to off set that they have had to bring on medication to keep that under control but in doing so brings on another set of issues.Mainly fluid retention.The other day the doctors were concerned about the fluid overload and were in a discussion of what to do.Thankfully a switch of bolus lasix to drip lasix seems to have done the trick and Presley is peeing on her own.Let's continue a pee-pee dance shall we?

To top it off,Kele is sick.She started on antibiotic yesterday and hopefully is turning a corner.She found it ironic that she could only recall being as sick as this two other times,both times, Presley was in the PICU.Figures.

This is going to be a bit of a haul for Presley.They,the doctors, want to take this slow.They are encouraged by Presley's last 48 hours but still anticipate her being on the vent,a high frequency oscillatory vent,for another week and with that said,Kele has a few specific prayer requests:

*Nothing hinders her positive responses thus far,like infection or blood pressure issues.
*Prayers for her little preemie lungs.That they are able to rest and heal and that come the time to ex-tubate,she will come of effortlessly and without incidence or issue.
*Praying to keep her little body strong throughout this fight.

Kele is so sad.She aches to hold her baby.She misses her.They have Presley basically, if not literally, paralyzed,as to not allow movement or energy exertion.
She yearns to see those beautiful eyes and hear her giggles.Please pray for Kele and Mike as they pass through this frightening time.Lift them with positive thoughts and prayers of strength,as they balance home and the hospital,as well as their personal ebb and flow of emotions.Let them know we will be present,if only in prayer,until they can bring their beautiful butterfly home.

24 comments:

Ruby's Mom said...

Heather,
Thanks so much for this update.I have been so worried about Presley and Kele.So sorry to hear that Kele is also sick.Can you tell me what hospital Presley is at?I live about 45 minutes from Kele.
I'm praying that that sweet little Butterfly gets well and gets back her energy so she can be getting into things again.

Tina said...

Prayers of strength and healing are being said for sweet little Presley. I am sending loads of positive energy to her, energy that is surrounding her entire body, healing energy.

These have been rough weeks, just when one thing hits you another one of our precious little ones is in trouble. Well thank god we are a strong big family and there are always always enough prayers to go around for each single one of our babies. Presley will be healed and Kele will be seeing her beautiful eyes and hearing her giggles very soon again.

Judy said...

Prayers being sent! The other day I was thinking that it would be nice to have a screen saver or wallpaper with all of these little peanuts that need prayer. That way, when you turn your computer on, you see them and can stop and pray for them ;)
I'm not savvy in the computer dept. but maybe someone could?

Gabriela said...

Ich denke von Herzen an die kleine Maus, und heute an Pfingsten ist die Welt offener dafür denn je...
Herzlich
Gabriela

Samantha said...

That poor little sweetheart. I will be saying many prayers for her and her family.

Angi said...

Just added them to the blogs I am watching...saying a prayer for a strong little girl to be just a bit tougher:-)

Anonymous said...

Oh Heather, I will have a special prayer today during our church service for all three of them and also for you and your family. I know through your posts how all these families have become your family.

Stay strong and God will do his work.

Robyn from Otisco Lake

sturpin said...

oh sweet baby and poor Mama. I remember all of this oh so well. I will pray

my family said...

Ihave been wondering about the family, thank you for the updates. THey are all in our prayers, She has many prayer warriors out here. We love Miss P and pray for a full recovery. Kele I am praying for your recovery also and that GOd gives you all peace

MOm said...

Praying for a quick and uneventful recovery for this sweet baby.

Kelly said...

Continued prayers and positive energy being sent to the Giles Family! Waiting patiently for our little "tiger-fly" to heal and return to the comfort of her own home!! Get well Kele and hang in there.......Presley is a fighter and we are a community of love and prayer. You are not alone:)

Rochelle said...

Absolutely praying for her. Thanks for the specifics so we can lift them both up.

Anne and Whitney: Up, Down and All Around said...

i am just devastated to read and see that presley is still so sick and now that kele is sick too!!! i keep thinking about them and saying prayers for a QUICK recovery!

Runningmama said...

I'll be praying for her as well.

Skye is the Limit! said...

I just re-did her button link. It should work now if you just recopy it :)

scrappy quilter said...

Praying for this little one and her family. Hugs

Googsmom said...

{{{{{PRESLEY}}}}}}

Many Prayers being said!

Bulldogma said...

Thank you so much for taking the time to update us on Kele's little Tiger-fly!

To Love Endlessly said...

We are absolutely praying for this family. Thank you for the update and keep us posted.

Aunt Kim said...

thank you Heather.

Kim (Kele's sister and Presley's aunt)

B Brown said...

Praying for Presley. Thanks for the update.

MoDLin said...

Presley and Kele are in my thoughts and heart. I am holding firm to a vision of their renewed strength and health. Thank you for sharing updates with us.

Shannon said...

Oh! I just found out about them! I am praying and adding them to my blog to have people pray too!!!

Cynthia Braden said...

I am praying for Presley and your whole family!! I pray the Presley and you(Kele) will be feeling well soon. Please let me know if there is anything I can do to help!!
Hugs!!!! Cynthia Braden