Saturday, May 22, 2010
Prayers for the "tiger-fly",formerly referred to as the "butterfly" ....
Although,the truth be known,she will always,always be the butterfly to me.
Sweet,sweet Presley fluttered into my life,my families life,back in July 2008.She was,at the time,in true Presley fashion,flaunting that feisty spirit of her's,on her way to an AV Canal repair.In-patient I might add and where she had been in-patient, since her birth at barely 28 weeks.Not a day at home,nor would she find home, till after her repair.But fight she did,successfully having that tiny heart made new and now officially and forever, part of the elite "zipper club".
And those months of prematurity,and months of her tiny lungs and tiny heart fighting each other,did not come without a price and so,now the little butterfly finds herself unfairly fighting again because of it.
I talked to Kele today,or rather texted, as not only is Miss P fragile right now,I fear so is her momma also.She was afraid if she talked she would not talk but rather cry her way through the conversation.
So tonight she has asked me to put out a plea for prayers for her little tigerfly/butterfly.
What do things look like right now?One sick little love.They originally thought it was bacterial pneumonia but have since identified it as viral.Which is a good thing as it helps them keep it more contained.They do however have her on a few big gun antibiotics to fend off any nasties lurking around.Presley has struggled with her blood pressure as well so to off set that they have had to bring on medication to keep that under control but in doing so brings on another set of issues.Mainly fluid retention.The other day the doctors were concerned about the fluid overload and were in a discussion of what to do.Thankfully a switch of bolus lasix to drip lasix seems to have done the trick and Presley is peeing on her own.Let's continue a pee-pee dance shall we?
To top it off,Kele is sick.She started on antibiotic yesterday and hopefully is turning a corner.She found it ironic that she could only recall being as sick as this two other times,both times, Presley was in the PICU.Figures.
This is going to be a bit of a haul for Presley.They,the doctors, want to take this slow.They are encouraged by Presley's last 48 hours but still anticipate her being on the vent,a high frequency oscillatory vent,for another week and with that said,Kele has a few specific prayer requests:
*Nothing hinders her positive responses thus far,like infection or blood pressure issues.
*Prayers for her little preemie lungs.That they are able to rest and heal and that come the time to ex-tubate,she will come of effortlessly and without incidence or issue.
*Praying to keep her little body strong throughout this fight.
Kele is so sad.She aches to hold her baby.She misses her.They have Presley basically, if not literally, paralyzed,as to not allow movement or energy exertion.
She yearns to see those beautiful eyes and hear her giggles.Please pray for Kele and Mike as they pass through this frightening time.Lift them with positive thoughts and prayers of strength,as they balance home and the hospital,as well as their personal ebb and flow of emotions.Let them know we will be present,if only in prayer,until they can bring their beautiful butterfly home.