Tuesday, March 25, 2008
TRYING HARD TO KEEP THE FAITH
I have waited to post until tonight knowing Zoey was going for a neurology appointment today and I wanted to give people a full update.I wish I had great news to report but suffice it to say the day had other things in store for us. We are about to embark on yet another leg of this crazy journey.Unchartered territory that will once agin leave me versed in areas I would rather have no knowledge about let alone new medical terminology to wow all my friends with! On a serious note, I am really ticked! Her EEG showed some improvement but not enough to warrant continuing this course of treatment for her seizures. We have been so please by her progress, on an outward appearance. She is rolling like crazy, interacting and doing even new things each day but the seizures are still there, granted less in severity and number but nonetheless there. We need to eliminate them and therefore we have to move on to ACTH. An intense steroid type treatment with tons of side effects and no guarantees. We are frightened for our little Zoey and cannot understand why this darling child must withstand yet another very unnatural thing to be done to her. We need everyones continued prayers because this could prove to be one of the hardest fights to date. I find myself trying to understand how we came to this place, to find our family in almost exactly the same place we were in at this time last year , with such uncertainty before us. A child that has done nothing but fight tooth and nail to be here. A child with unconditional love of all those around her, so forgiving to all that has been done to her. A child who , like all others, deserves a chance to live her life as full and rich as all the rest of us. A child who's mother is just trying to keep the faith.