Monday, November 10, 2008

"When it is Dark Enough, You Can See the Stars"Ralph Waldo Emerson





Tonight I arrived home to find Joe already asleep.He was a holy terror for Taylor this evening.As per Taylor's description. I think she slipped him his Melatonin a bit early.Who could blame the poor girl?She has been doing the mommy and daddy role solo, most every day.Have I mentioned how proud I am of her?I mean really,really proud of her.Today was especially difficult for her.Both boys have come down with colds.I know,great.I have a child with a white count of 1 and an ANC of 90 and colds are circulating around the house.Maybe it's a good thing I spend most of my time at the hospital.Maybe I will miss it.Hopefully.All the more reason to start eating better and trying to rest when I can.Much easier said than done.But tomorrow I plan on loading up on the vitamin C,just in case.So from the numbers you can see that she STILL has not zeroed out.Who would have thought I would be wishing for my child's immunity protection to be completely wiped out?But it is a necessary evil.It's the only way she can then turn around and head in the right direction and then,maybe we can head home for a week before Round 2.Zoey,as you can see from the pictures,had another fabulous day.They took her off IV fluids so that makes her tube free.Which is great.Do you see something else interesting about the pictures?Look close ..... that's my girl ..... sitting ..... alone ...unsupported ..... by herself.Granted,she was not up for long,maybe a few minutes but hey at least she's up.She hasn't been this close to sitting since right before seizures, which was in January.How is that for resiliency?I mean seriously,the child was just diagnosed with Leukemia,she just finished her 1st Round meds. and now is when she decides to sit.Amazing,simply amazing.Today I briefly met a couple of Zoey's "friends" on the floor.First there was Faith.Faith is 3 years old and has ALL.Just diagnosed and they sent her home but have her heading back on Wednesday to begin treatment.Hardly seems fair to be sent home only to have to basically turn around and be readmitted.Kind of a tease.The other child I met was Christopher.Christopher is 10 and oh I could just squeeze him.So cute.He also has ALL,like Faith but has been in patient for a long time.So sweet these kids and because of their little extra something,something I just want to grab them and love on them.Who knows,maybe one day.Well,that's about all.I am going to settle in and head to bed.Novel concept considering it is only 11:30.Early for me.Keep those prayers coming .... look at Zoey,you can tell she feels them.For that we are humbled and most especially grateful .... as always.

21 comments:

Anonymous said...

Heather,I am thrilled to see Zoey sitting on her own.She continues to amaze me and look at that beautiful smile!I hope your doing ok .I always hated the nightime at Childrens,too much time to think on my own.I want you to know you,Zoey and your family are constantly on my mind and in my prayers.Please call if I can help!Much love,Helen

Evalena's Mom said...

Way to go, Zoey! She's such a resilient little girl. Continued prayers from us in GA.
Kathleen

Reagan Leigh said...

How exciting!! I noticed it immediately...this girl just never ceases to amaze me! Sitting (even for a few minutes) is a HUGE step in her development. HUGE!! I'm so happy for her!!! Amazing!

Anonymous said...

I stumbled across your blog via Jackson's. I am touched by your Zoey's story and will definitely keep her in my prayers.

JUST A MOM said...

What a big girl Zoey is, such cute pictures! We love you Zoey and continue to pray for complete healing.

Alison and gang

Anonymous said...

Look at Zoey sitting on her own everyone, wow, wow, wow. She looks so strong and so good. Glad to hear you are eating and resting better, or that is the plan. Prayers and showers of love to you all, Christi Harman

Kelly said...

Wow!! Look at her! What adorable pictures, I hope the boys feel better, soon.

Rachel said...

For all she is going through you sure seem to have a happy girl. What a wonderful smile she has.

Prayers Always!!!

Rachel

Jaxsons Fight said...

Look at her such a big girl. Were did you get those leggings? They are so cute.

kristyc said...

That is so fantastic to see Zoey sitting on her own!! She proves everyday what a willfull and strong girl she is!! Amazing!! You must be so proud! Her smile is so adorable! She looks like she is ready to take on the world!! Prayers are still flowing everyday!! Hugs too! xoxo

Anonymous said...

WOW Look at you Zoey... sitting up and so proud of yourself - Photos say to me.... "look what I'm doing everyone"! Amazing

My heart goes out to the boys and to big sister Taylor. So hard for the little guys to understand it all.

Just seems so odd that we all WANT little Zoey to ZERO OUT so things can turn around and maybe,just maybe everyone will have a few family filled days together soon.
(at home)

Hugs to All.....

Bluebelle

Molli Salzman said...

Zoey looks great sitting on her own! She is adorable! And she just looks soooo happy. I am drawn to that beautiful face. I am saying a prayer for Zoey and your beautiful family.

Take care,

Molli and Charlie

Anonymous said...

oh Heather, what amazing pictuers of Zoey sitting straight up! Her little body definitely knows to make strides while under treatment, she is doing HER thing in HER time and in HER style, nothing typical about this little Wonder!
My prayers continue for all your family, but please take really good care of You!
Sending much love to all of you, Marianne

Mary said...

Way to go Zoey! Look at that smile! She is as beautiful as ever!

Cleo said...

Way to go beautiful Zoey Grace!!!. Please continue to let that light of yours shine, continue to share your magical smile. Zoey, every time I see your pictures, I feel so empowered. It is absolutely remarkable how you keep showing everybody that you can handle any challenge, you just keep doing your thing, going with the flow and while you are at it, you teach us all the greatest lessons in love, acceptance, patience, tenacity. I feel tremendous respect and admiration for you.
~ God Bless you Zoey Grace ~

Continued loving, healing energies and prayers for you all.

Lots of love.

Sabrina said...

Great Job Zoey! We are praying for you and your family! I have added you to our church prayer list. Lots of love and prayers from East TN.

Christy said...

Heather,

Go Zoey Go! I'm so proud of her latest picture. What a fighter.
My Jake's memory verse this week made me think of you : Joshua 1:9

Have I not commanded you? Be strong and courageous. Do not be terrified or discouraged, for the Lord your God will be with you wherever you go.

Made me think of you and yours - so proud of Zoey. She doesn't seem discouraged or terrified - just Zoey :)

Also, Carla is at Emory completing her undergraduate and is very involved in medical research. One of her passions is cancer research. I'm attaching a website for ConKerr Cancer. They are looking for votes on-line to give them a $25,000 grant from L'Oreal to go to hospitals and sew pillows for children with cancer. If you're interested, place your vote. The website is : http://www.conkerrcancer.org to find out more info about her work. The website to vote is:http://www.womenofworth.com voting is between November 10 and 24.

Blessing to all of you - I never thought I'd be praying for a kid to get her immunity number to zero, but that's exactly what I'm praying :) Christy

AZmomto8 said...

Bless Zoey's heart, to save sitting for a time when Mommy needed a huge positive from her, what an angel!

We continue to pray for all of you.

Kele said...

OMG!! That was the first thing I noticed was her sitting up! HOORAY Z~ You are such a little strong fighter!!

Cheri said...

I am getting so "in tune" with Zoey... when I first saw this post the first thing I noted was her sitting up and thought to myself...."Whoa, I think that is new for her!". Way to go Miss Zoey....you just keep showing your strength and endurance!!!!

Anna said...

Look at Zoey!!!! I almost started crying. Such a beautiful big girl-now sitting up on her own! Still praying Anna