Tuesday, December 9, 2008

Round Two begins ....

Oh,boy .... two weeks at home could spoil a girl and I'm not talking about Miss Zoey.The rude awakening of the 4th floor hit with a vengeance.Were are back at inpatient status .... after waiting around 8 hours,walking the hospital aimlessly,until a room became available.What an absolute nightmare and I must tell you,it did not make for a happy girl.Again .... I am not talking about Miss Zoey.The morning did however start off fairly well.Really well actually.Zoeys ANC jumped from 350 to 1260,which was the go ahead to start Round Two.Zoey headed into the OR for her lumber puncture and I took a deep sigh of relief.After Zoey's lumbar puncture and a dose of chemo through that puncture site,we found out that her doctors assistant dropped the ball and never put in our orders to be admitted.That meant that the floor was not expecting us and that was not a good sign.It became a waiting game.So we waited and waited and waited.Mark met us over at the hospital later in the afternoon and he was less than pleased.And when something riles him up,you know it is a big deal.Zoey was a trooper though,as usual.She had to wear a mask all day while meandering the halls of beautiful CHLA and there were moments when she wanted nothing to do with that mask.Who can blame her?It is an ADULT size mask.Can you believe that the hospital carries no children's size masks?This is a CHILDREN'S hospital for crying out load.We ordered some kid size one's on line but found out that their thickness was not enough to protect her.I am bound and determined to find some place that carries a type that provides enough coverage AND fits.Enough complaining ..... although there is SO much more I could spew out.We finally made it to our room at 6 and due to yet another error with orders,we could not start chemo until today.But start we did.At exactly 2pm.That means that at exactly 2pm Saturday, Round Two's medication portion will be finished .... yippee.Zoey has been an absolute doll.She was so smiley and happy from the second we hit the floor.Except, for the first hour and a half after chemo started.That first little bit of time found her a little nauseous.Nothing too overt but some slight coughing and a couple of gags here and there but that was it.It passed and she was her happy little self.She amazes me each and every step of this journey.As much as I was sad to have to bring her out of the comforts and confines of her safe little home,I know this is where she must be.And what a difference my state of mind is this time around.I feel much more comfortable and confident and I feel more peace taking over the uncertainty.Perhaps it is called Gods grace.I think it is.I hope it is.I pray that it is.I forgot to pack the camera but just scroll down to any number of the pictures below and that is how you would have found Zoey today.Waving and smiling.Well,it's almost midnight.Laundry to finish and then bed.That familiar feeling of exhaustion is creeping in,except this time the heavy heart part doesn't seem as intense.It is present but not as overwhelming and for that, I am so thankful.Keep those prayers and good vibes coming ...... Zoey is counting on them.

11 comments:

Karen Owens said...

My prayers are for you are that this stay will go by faster than you can imagine -- that time will just pass by. I know how boring it gets, not to mention all the times I get frusterated with the docs :)

Anonymous said...

Praying for round two to go as well as round 1 did. When I was in NY last Wednesday I lit a candle for Zoey at St Patrick's Cathedral.

Ami G

Reagan Leigh said...

I'm sorry for the junk you had to deal with today. But on a good note, Zoey seems to have tolerated this lumbar puncture much better than the last, so for that I am very thankful. I pray for a smooth round that will put you back home with your family ASAP!! Sending lots of prayers your way!
Tera

Carey said...

yeah! I'm glad you could get started. I know it stinks, being there for Christmas, but you guys will make it work no doubt.

Hey, we had some mask issues too. We did have the kids size masks, the teal colored ones right? I actually probably have a few in a bag, untouched. If I can find them do you want them?

Otherwise, there is a way to make the big ones smaller. You need some of that stretchy netting stuff. I'm not sure what it is but they used it to hold things in place ... an IV on the arm, or sometimes they made a tank top out of it and put it over her tubies so she wouldn't pull at them. (that was in the beginning though and didn't last long as her fat tummy made the tank top roll up under her armpits ... another story though)

Again, the longest commeter on the page. Sorry!

Cleo said...

ZOEY GRACE you are AMAZING!!!, my faith in you grows stronger day after day. Your courageous spirit, strength and determination are helping you conquer this challenge one day at a time. Many Blessings to you ~
Sending prayers of strength and loving and healing energy your way every day :).

Anonymous said...

May God's Grace fill you and Zoey. Thinking of you with much love. Here goes Round Two, go get em' Zoey girl. Love, love, love, Christi Harman

Dawson said...

Prayers that you will find yourselves in the comfort of home again very soon. What an amazing child miss Zoey is!!!

Michelle said...

I am so glad I heard from you...I had started to get worried, not hearing anything or knowing if you all were okay! thankfully you are, despite the hospital maddness! I am so glad her ANC levels came up and she started round 2!! We just heard from the doc...I'll post the results soon! But please know we are here for support and love, always!!!

Melani said...

I started reading your blog after I read the article in the Camarillo Acorn. God bless you and Zoey and your family. I will continue to follow your blog and pray.
Love, Melani

Kele said...

Yippee!! Tried a couple of times to call, anxious to see how it was going and you left us hangin' for a day!!
Yes, I got the picture mail, but it was so small I was hoping to see a bigger version on the blog... what gives? No pics for all of us dying to see our girl!!
Please post a Zoey smile soon...need my fix!!
Love you!

heidi marie said...

my prayers are with as always. when will you get out of the hospital after round two? i hope before xmas! your little zoey is so strong...and so it mom and dad.