Tuesday, May 19, 2009
Fatigue once again, wins ....
Lots to report but just do not have the energy to report them.Instead,I will keep it as brief and as simple as I possibly can and then I HAVE to get to bed.On my nights home I am never in bed before 1am and tonight, I just have to try and make it happen.Thankfully I function well on very little sleep or I would be in some really serious trouble by now.Especially after the last 2 years.I feel it beginning to take a toll on me though and I definitely can SEE it catching up with me.The mirror does not lie and oh how I wish it did!Enough of that though,first up instead,Miss Zoey ... little stinker.Or "trickster" as our roommate Jayden's mom calls her.Lulls you into thinking she is going to do one thing and then she changes it up and does another.Just making sure we are paying attention I am convinced of that and wants to make sure we are not getting too comfy on our hospital issued cot/bed/bench,as not to miss any of her antics.Last night,2:15 am and I am awoken to coughing,gagging,retching from Zoey's bed.I fly up only to find her throwing up,or at least trying to and also,just by feel,can tell she is on fire.Thus the reason for throwing up.Fevers do that to her.From there we scramble a bit to asses things and then,finally, the big gun antibiotics come out.Poor love.She felt like garbage and looked about the same.We checked out her g-tube,which had been heading south over the last few days and we see it was REALLY,REALLY not looking good.She was already on a fairly decent antibiotic but it obviously was no match for a girl with a white count of .12!!! I don't even think that counts as a white count actually.The g-tube site was nasty looking and bleeding,which was lovely but by the end of today it was looking better.Zoey's platelets went under 5 again and with the g-tube bleeding and bruising and risk for internal bleeding,she received another transfusion of platelets.That makes 2 in less than a week which has never happened before and only proves the strength of this round.Zoey's marrow is spent.Hit hard and not finding it easy to recover.Mark called a few hours ago and she was spiking a fever again but hopefully it will settle back down and she will be able to get some sleep tonight. She is so tired, the little love but at the same time, so very charming and silly and loving and forgiving.She never,ever ceases to amaze.I have to abruptly end this.Joe has woken up and I am literally falling asleep between words.I leave you with a few pictures of my handsome guy Jake on his First Holy Communion.I will post more on that tomorrow as well as our wonderful visit with precious Preslie and her mom and dad.I forgot my camera but Mark downloaded from Michelle's camera onto his computer their photos, so I will post more on that as well.Till then pray for Zoey Grace.They were not lying when they said this round was going to be a battle.On the whole though,I can tell you, she is fairing far better than most on that floor and with that said ,please pray for those amazing children as well,please.
* Zoey was in a non picture taking mood today so ...these are about as good as it gets.As for Jake,do you see this face.This face is truly so angelic and sweet and kind hearted and loving.You can just see it so very clearly in his expressions and his body language.So proud of him.So very proud.