Friday, May 15, 2009

A Girl and Her Daddy ....





Pictures speak louder than any words I could add.Suffice it to say,this child absolutely adores her daddy.As for Mark,he absolutely adores this child.This child of mine continued to be worn out and cranky and irritable most of the day.She received a transfusion this afternoon and I am so hoping by tomorrow the spunk will have returned.Platelets went down again.She is at 26,000,normal is 140,000-250,00 but we will hold off transfusing her unless she has active bleeding again and as for her white count .... it is at .3,and for those who might be wondering what a normal count should be well,it should be around 6.0-11.00.Zoey barely hits a range of ... any!!Scary ,as white blood cells are what helps you fight infection.Blood draws are on a Monday,Wednesday,Friday schedule and I am hoping by Monday that she will have zeroed out and will have only one way to go and that is up.And up means one step closer to home.It will probably take some time.Maybe another 2 weeks before home will be on the horizon.I learned today that although all her other rounds of chemo were 1/3 less than a typical child's would have been,this round was the FULL shabang.The previous rounds were a bit less due to the highly sensitive little bodies of children with Down syndrome and their ability to withstand not the leukemia but rather the chemotherapy itself.The last round they want to hit them extremely hard to hopefully ensure the eradication of any nasty abnormal cells.No wonder my baby is tuckered out.Lots going on this weekend on the home front.Jake will have his First Communion on Sunday and tomorrow night we will finally be meeting little Preslie and her family, as they are out here to hit Disneyland and San Diego.I am so excited and will post pictures for sure.That is all for now.Lots more to say but exhaustion has the upper hand once again.Prayers for our little love this next week as she is highly susceptible to infection right now.We are so praying she misses the big gun antibiotics in yet another round.Virtually unheard of on our floor but another amazing example of Miss Zoey and the beauty of her courage,resiliency and grace.

22 comments:

CFMama said...

Followed the link from Riggs Family Blog. Was reading a bit about your family a Zoey. First of all, she is a cutie for sure!! Especially love the pictures of her wearing the pink stripe pajamas a bit down the page.

I will keep you all in my prayers!

stephanie said...

Oh,super pics.Zoey is such a cutie,wish I could squeeze her.I am so excited for Jake,Congratulations and God Bless you on your special day!Heather have a blast with Michelle and Preslie.I'm so happy you are getting together now,just the pick me up you need.Expecting lots of pictures of both events, please. A video would be nice too.Lol, enjoy your weekend, sending,hugs and prayers.

Cammie Heflin said...

She looks great!

Lacey said...

She does still look pale, but beautiful. Ray loves the pic's with daddy, they are ones to hang on the wall. I'm excited for Preslie's family to meet you and Zoey, they are in for a pleasant surprise, as she is even cuter in real life. Praying that she continues to do well and you stay strong sitting in a hospital room all day long. Hugs from me and Jax.

The VW's said...

PRAYING for you Zoey! Keep doing your Zoey thing, that you do so well! You are such an inspiration! HUGS!!!

Junior said...

the pics of Zoey and her dad are beautiful. Keeping your little warrior in our prayers.

My name is Sarah said...

Priceless and Precious!!

scrappy quilter said...

You can just see the love between these two....father & daughter. Beautiful. Continued prayers for your sweet little girl.

Cheri said...

ABSOLUTELY precious photos!!!!! So cute! I love the expressions she is giving her daddy :) Hug little Preslie and Michelle for us. :)

Mia hat eins mehr! said...

Oh my, those pictures are really, really beautiful. I hope and pray for you! Go, Zoey, go! Home is so near.

Love
Claudia!

Hailey said...

Would you kindly share where you get your beautiful blankets from? My niece spends a lot of time in hospitals and I love how you "dress" up Zoey's hospital bed with different blankets. I would love to do the same for my niece if you would please share where you shop for them. Thank you!! And God bless.

Kristen's mom said...

Count recovery is one of those things that only us AML parents can truly understand. Wait, wait and then wait some more. Bless you all.

Mommy to those Special Ks said...

So cute! There is just something special about girls and their daddies! :) Praying those counts begin their climb soon!

Sophia said...

Zoey the little angle! What a brave girl you have. I wish I could have that much courage. I love you all, and I'm keeping you in my prayers.

Melissa said...

WOW, Zoey...you do have some amazing COURAGE & GRACE! I can't get over your strength little girl...You are going to do some amazing things when you grow up;)
God Bless you sunshine...
Praying for you EVERYTIME...PRAYING FOR YOU MIRACLE! {{hugs}}

Anonymous said...

There's nothing like Father and Daughter .... and this pair takes the big prize. Wonderful pictures. Prayers for good numbers and recovery. Love to you all, kisses to Miss Zoey, all wrapped up in God's Grace. Miss you all to pieces. Love love love, Christi Harman

Lacey said...

Its not like your busy or anything, or stuck in a hospital room, how is my girl? And how was your visit with Preslie and her family?

Victoria Strong said...

Oh, sweet Zoey. She does look tired this time, but so full of affection. I love these photos. So, so sweet. Sending prayers, love, and hope.

Sarah and Joey Walker said...

Look at that beautiful Daddy's girl =] I found your blog & I always enjoy reading about your sweet Zoey =] She always looks so full of life!

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