Wednesday, August 19, 2009
"Friends are relatives you make for yourself." ~Eustache Deschamps
Look who came to play!!It's Mr.Jax and his amazing family.That's right,the lovely Rugg family came Monday and hung out with our crazy crew.We swam and ate and chatted it up till way past the kids bedtimes.Even Miss Zoey's.It was almost 10:30 when the meltdowns began and we were forced to call it a night.But let me tell you,we had an incredible time.As if we have been life long friends.Well,we certainly will be now,I know that for certain.Zoey was smitten with everyone.With an extra something,something for Ray and little Carter.And then there's Jax.I absolutely fell in love.In between two of Zoey's chemo rounds, a bit back,we did get together briefly when they were in town but this was different.More time and no rush and and as Lacey put it,she was much less nervous to hold Zoey because last time she was so scared of passing germs along to Zoey during treatment.We really had an opportunity to sit and visit and hold each others precious little loves.Jax has been hit so hard.So many obstacles to overcome and he just keeps pushing forward and fighting through it all.I sat with him and wished I could make everything better but my magic wand doesn't seem to work as it use to.The Rugg's hopefully will be making a move in our direction before too long.Tons of things to put into place before hand though.One of the biggest is heading to Boston for Jax's heart repair.I am also hoping they can find their way to Dr.Shields at UCLA.Jax is in an almost constant state of seizing due to a hypoxic brain injury he suffered in June 2006.Dr.Shields is one of the premier doctors in the country for treating IS,it's accompanying hypsarrthymia,which,in a nut shell is chaotic and catastrophic brain patterning, as well as an all around guru in the world of pediatric epilepsy.We adore him and trust him implicitly.I truly think Dr.Shield's would be an invaluable source of insight and knowledge when it comes to trying to bring Jax's seizures under control.I'm kind of obsessing on this aspect of the amazing little Jax.I think it is because I see it in his eyes,that half smile and look about him that tells me that if someone could get the upper hand on the seizures,Jax would break on through ... feel free to tell me to shut up anytime now Lacey! So yeah,there you have it ... we love all the Rugg's.We feel blessed that they could squeeze us into their hectic vacation schedule and we are praying that all their dreams of a move and career change will happen sooner rather then later.Most of all we pray for the very sweet Jax, that he will get to Boston soon,fly through his repair and begin progressing forward like he so very much deserves.Thank you Rugg family for spending time with us but most of all thank you for your unconditional friendship.Your family represents the beauty found in this crazy world of blogging and for that we feel blessed beyond measure.
*Zoey LOVED Ray's Dodger hat and it's a good thing Ray loves Zoey because she is about the only one who could get away with tossing his beloved Dodger hat to the floor repeatedly ... it was so cute!