Wednesday, August 19, 2009

"Friends are relatives you make for yourself." ~Eustache Deschamps







Look who came to play!!It's Mr.Jax and his amazing family.That's right,the lovely Rugg family came Monday and hung out with our crazy crew.We swam and ate and chatted it up till way past the kids bedtimes.Even Miss Zoey's.It was almost 10:30 when the meltdowns began and we were forced to call it a night.But let me tell you,we had an incredible time.As if we have been life long friends.Well,we certainly will be now,I know that for certain.Zoey was smitten with everyone.With an extra something,something for Ray and little Carter.And then there's Jax.I absolutely fell in love.In between two of Zoey's chemo rounds, a bit back,we did get together briefly when they were in town but this was different.More time and no rush and and as Lacey put it,she was much less nervous to hold Zoey because last time she was so scared of passing germs along to Zoey during treatment.We really had an opportunity to sit and visit and hold each others precious little loves.Jax has been hit so hard.So many obstacles to overcome and he just keeps pushing forward and fighting through it all.I sat with him and wished I could make everything better but my magic wand doesn't seem to work as it use to.The Rugg's hopefully will be making a move in our direction before too long.Tons of things to put into place before hand though.One of the biggest is heading to Boston for Jax's heart repair.I am also hoping they can find their way to Dr.Shields at UCLA.Jax is in an almost constant state of seizing due to a hypoxic brain injury he suffered in June 2006.Dr.Shields is one of the premier doctors in the country for treating IS,it's accompanying hypsarrthymia,which,in a nut shell is chaotic and catastrophic brain patterning, as well as an all around guru in the world of pediatric epilepsy.We adore him and trust him implicitly.I truly think Dr.Shield's would be an invaluable source of insight and knowledge when it comes to trying to bring Jax's seizures under control.I'm kind of obsessing on this aspect of the amazing little Jax.I think it is because I see it in his eyes,that half smile and look about him that tells me that if someone could get the upper hand on the seizures,Jax would break on through ... feel free to tell me to shut up anytime now Lacey! So yeah,there you have it ... we love all the Rugg's.We feel blessed that they could squeeze us into their hectic vacation schedule and we are praying that all their dreams of a move and career change will happen sooner rather then later.Most of all we pray for the very sweet Jax, that he will get to Boston soon,fly through his repair and begin progressing forward like he so very much deserves.Thank you Rugg family for spending time with us but most of all thank you for your unconditional friendship.Your family represents the beauty found in this crazy world of blogging and for that we feel blessed beyond measure.

*Zoey LOVED Ray's Dodger hat and it's a good thing Ray loves Zoey because she is about the only one who could get away with tossing his beloved Dodger hat to the floor repeatedly ... it was so cute!

17 comments:

Ruby's Mom said...

So jealous that you both got to meet each other;)So glad ya'll had such a good visit.

Junior said...

Wonderful that you guys got to meet, what a special day.

Mama Mason-Mann said...

That's so awesome! I wish we could find a way to all get together! Wouldn't that be magical?!

Lacey said...

I'm going to get Dr. Shields phone number before we leave. And after seeing that pic of myself I'm definitely going and buying that eliptical to work out. You know we feel so at home down here, we love Simi and Camarillo, wherever we end up we'll be happy.
Thanks for the great time and I need to get that marinade because that chicken was yummy.

ABandCsMom said...

So awesome that you guys were able to spend time together. I'm jealous!
I can't get over how long Zoey's hair is getting. LOVE the curls!
pst...I have my own Xanax!

Cammie Heflin said...

I am jealous too! I would love to meet both of these babies! (and their mamas!)

Stephanie said...

I am so amazingly happy that you all were able to get together this way. Just having someone else to talk to, to confide in, can be invaluable in times like these.

I have to admit, as happy as I am for you all.. I'm totally jealous!

That much cuteness in one place is just too much.

Sending out love and prayers from down here in Florida.

scrappy quilter said...

That is wonderful that you got to spend time with this incredible family. Following his story I can see they just how amazing they are.

The quote you have at the top of the post....I found it very interesting in that my maiden name was Deschamps.

stephanie said...

I am so happy . The two families that needed some carefree downtime finally got what they deserved. Looks loke a great time was had by all.

blessed mama said...

Beautiful children! Beautiful families! This is what life is all about. Bless you all.

The VW's said...

I'm so happy that you guys had such a wonderful visit together! Although, I am quite jealous! Friends who understand are the best friends! I love all the great pictures!

Michelle said...

What a perfect night. So glad you were able to meet and reconnect. Wish we were there with you!! You are so right, friends do become relatives, sometimes even closer then the one's that were given to us! :) Love you guys

Anonymous said...

A great time was had by all it appears! great photos


Aunt Bluebelle

sturpin said...

I love your quotes! They are always so wonderful!

Sounds and looks like y'all had a wonderful time! Won't that be wonderful when Jax gets his SVC and seizures taken care of? So thrilling to think about!

I love Zoey's face!!! She is such a loving little person!

Anna said...

Ahh Infantile Spasms.....
I pray Jax can meet you Dr friend too. Looks like everyone had a great time. Also, great Quote Heather.

Stephanie said...

That quote you left for me was beautiful, and so so true.
"Life is what happens to you while you are busy making other plans"
John Lennon.
Just what I needed.

Kele said...

UGH! I am so jealous looking at pics of Z passing out hugs to everyone!!! When Oh When will it be MY TURN!??!?!