Tuesday, February 16, 2010
Another 2 months ...
Yesterday was oncology clinic day.The day was,shall we say,interesting.Not lab results wise but it was a comedy of tiny errors from the get go but no matter.The most important aspect of the day,Zoey's blood work,was flawless.As in no red flags.Relief and gratitude for sure.Her numbers look almost identical to 2 months ago.Pesky,pesky white blood cells,lagging still.3.11 ...normal is between 4and 10.The good news is that within those white cells she has good neutrophils and monocytes and that helps her to further fight infection and yields her an ANC of 1250.I'll take that.Platelets are 188,000,which is great and once again my child is kicking out hemoglobin like no other... 16.7...normal is between 11-13.I sure will take higher then normal rather then lower.So that is the long and the short of it.Cut loose till April.When we return in April we will jump to every 3 months and be that much closer to calling her cured.What an amazing day that will be.
Time to get busy planning Zoey's 3rd birthday.We are going to have a blowout.This year will be the first year,since her birth that we or rather she, has not been in crisis mode.We are doing a butterfly theme.I found this quote that fits our little love perfectly:"There is nothing in a caterpillar that tells you it's going to be a butterfly." ~Richard Buckminster Fuller....Super excited for this celebration.Anxious to share the joy of Zoey's 3rd birthday with all the people who have supported us,loved us,and even forgiven us ,when we have been less then perfect,while finding our way through the last 16 months.
As for the little love... she has been a little "spacey".That is the best way to describe her.Not as sharp and a bit cranky.Most likely the new Topamax dosage.Topamax has a nickname,"dopamax",for it's cognitive dulling potential and I believe that is what we are seeing.I don't like it but then again, I like seizures even less, so we will ride it out till she adjusts to it.
Found her in the shoe basket this morning.Literally was upstairs grabbing laundry for just a few minutes and I came down and found her like this.The part that cracks me up the most is that her arm is out of her shirt ... no idea how that even happened.
A huge thank you once again,to all of you who prayed for us and mostly Zoey, through this last week as we hit all her big appointments.I was reminded in an email today from a long time blogging friend,to not doubt the faithfulness of the God who has seen us through thus far... a much needed reminder.One I hope that carries me through for another 2 months.