Thursday, June 14, 2012

Belonging ...


The weekend before last, Zoey and I ventured out of town to be part of our county wide Special Olympics event. First time ever.  Mark was working that Saturday, the boys tagged along with him, so Zoey and I went solo. Just me and my little sidekick. The games were held in Ojai. A quaint little bedroom town, about 45 minutes north of us. Ojai can however, get hot. Really hot. We are spoiled here in my town because we are in such a close proximity to the ocean, a place like Ojai, on a summer day, can easily get 10-20 degrees hotter then what we are use to. So we left armed with sunblock and hydration. Or, at least I thought we had the hydration covered. Seems like an hour or so in, the sun beating down, I go to feed Zoey and it looks like I have left behind one necessary supply. To add to my panic, I hightail it to the van to retrieve my handy dandy bag of emergency supplies and ....  for some reason, it is no where to be found. Great.


With formula and syringes, but no extension, the child will not be eating. Drinking. Whatever you want to call it. Slightly more panicked, I know I have little choice but to head back home. Not like I can give her a juice box or something, and call it a day. I wish. Feeling like the oh so crappy mom, for the second time in less than a week, I go to pack her up. It suddenly dawns on my friend, not me cuz I am too busy berating myself, but she mentions what better place to be, but at a Special Olympics event, with a whole field filled with special needs kids, then to possibly find someone with a spare tube. Genius friends I have.

So just like that, an announcement goes over the PA system and I kid you not, in under 2 minutes, no less than 3-4 moms, extensions in hand, arrive at our pop-up. I nearly cried. In fact I did, a short time later. One mom knelt beside me as I had Zoey's little belly exposed, pumping that milk into her, and before she left she leaned in and said, " I have been at this for 21 years. Go easy on yourself. No worries. Done far worse myself. She will be fine. And so will you."

And with that, she was gone. I didn't even get her name. Didn't meet her child. But it didn't really matter. At functions such as that, surrounded by what I affectionately call my 'peeps', I feel a sense of belonging.  No one to take even a second glance at your child or the method you are feeding her by.It hasn't always been that way to be honest with you. The feeling of belonging I mean. And there are still days that I am not certain where I fall within the communities of Zoey's multi-level diagnoses. But lately I am much more at ease with where I am in my life with her. More so in some moments, then when I am at gatherings with my typical children. I try desperately to balance the two worlds I walk in. It is not easy, that is for sure. I don't always to it with the grace I would like. But I continue to try. And I continue to fail. And every once in awhile, I experience what I did  on that Saturday morning and I realize, I do belong, if I only would allow myself to. I can be my own worse enemy I have been told and there is definitely some truth in that statement. Working on that. Really am.

Learned a lesson that day about finding the beauty amidst the chaos. Well that lesson of course and ... check the darn emergency Zoey supply bag would you, before you leave the house. Geesh.

16 comments:

Angi said...

Oh I love you! And your honest ramblings :-)
Good for the two of you on attending your 1st Special Olympics!! It is truly awesome.

Joyce said...

Beautiful story!! and such an impactful reminder that we are all in this together!!

Lacey said...

Great post, especially for this mommy who is lonely, and feeling a little un-belonging. You know I too over think things, which is probably what I'm doing right now. Oh well, it's just the way I am I guess!

Elizabeth said...

I love this story -- and I love that mom who helped you out. She is indeed one of our peeps.

Stephanie said...

LOVE THIS!!!!!!

And your last post too. Amazing boy you got there!

Anonymous said...

What a very special gift that "special needs" mom gave you Heather.(words of wisdom) She obviously saw your distress and with her words you were able to rise up.

Kudos to her. Who knows maybe she's find this blog someday...

Bluebelle
Also, kudos to your friend who came up with the announcement
idea.

blogzilly said...

It's a great story, and a terrific thing for someone to read who enters this universe when they are looking for some reference for what it is like in some circumstances when it comes to trying to find a place where you feel comfortable.

Ain't easy.

It also reinforces the importance of one thing...community is everything, and not just in the world of disability, but just the human community overall.

Shelly Turpin said...

You had me crying this morning. Love that the mother helped you - and love that you asked.

Rochelle said...

I am going to have to start reading these posts before I put make up on. Tears yet again.
Sweetness and blessings and belonging all rolled into one.

krlr said...

No g-tube but I do love my peeps. Mine seem to be mostly on line, & I've wondered how healthy that is but I do love y'all.

Meriah said...

I love it when stuff like that happens. I mean the serendipitous part of being in the right place, right time with the right friends. It's such a good feeling...

Melissa said...

I guess if you are going to forget supplies, you picked a good place to do it! I'm so glad that mom was there with what you needed. Both supply wise and with her words. You so often have the words I need to hear, telling me to be easy on myself, that I'm so glad someone else was able to have the words for you when you needed them. Lots of love from all of us!

colleen said...

As I was reading this I was thinking the same thing... those mini-vans must be filled w/ spare g-tubes... Don't berate yourself, you just forgot that you weren't in the "typical" world that you must struggle w/ every day - no spare g-tubes would be found in a typical grocery store parking lot, now would they? Perhaps you found a little slice of what heaven must be like at the Special Olympics!What a beautiful post w/ a great title - belonging!

EN said...

I can totally relate. I am not surprised by the outpouring of support you received from our "peeps". It is a great community :-)

Bea Braun said...

You are a wonderful and amazing mother. Zoey is so blessed to have you. What a beautiful experience and a beautiful way to spend the day with the little love.

Kristin said...

This brought tears to me too :) Love our special needs community!