"For the last two years I've said here and elsewhere that I'm going to make a video of still photos of YOU, parents of children with special healthcare needs and your wise words to yourself, THE DAY BEFORE YOU KNEW YOUR CHILD'S DIAGNOSIS. These words can be simple, complex, dark, light, positive, negative, funny, serious or everything all at once. I'm going to set the photos to music and hope it'll be helpful to new parents as well as inspiring. I imagine it'll be a healing testament for all of us."
Well, the video is done. And it is beautiful and I was so very privileged to be part of this project. And you know, it didn't come easy for me. Being part of it I mean. I felt exposed and vulnerable and judged as I stood there with my poster boards but honestly, the truth be told, that is how I often feel as I dwell in this world of disability from day to day. But I could not NOT do this. I felt it was important for all those who walk in this parallel world alongside me. Solidarity of sorts. But more then that, I thought it was especially important for those parents just dropped into this life. A message to those walking bleary eyed, full of fear and uncertainty. A shout out to let them know ... YOU ARE NOT ALONE.
Watch. Marvel. And then share.