Tuesday, April 8, 2008
Sorry for anyone waiting on an update from Zoey's appointment yesterday but the day was an absolute haze to me by the time evening rolled around. Mark and I are usually up until 11:30 or 12:00 but last night I dragged myself upstairs around 10:30 and barely remember hitting the pillow. Good thing I went to bed a little earlier as Zoey had a restless night. Up a few different times for a short "snack" then back to sleep. She seemed uncomfortable but I can't put my finger on why. Probably the ATCH building up in her system. We are extremely fortunate that Zoey has always been a fantastic night time sleeper. Cat napper during the day but great at night. So we have been spoiled. Tide may be turning thanks to the meds. though. She is down for a nap now, so here's the report. Her heart looks absolutely perfect for now and we are thrilled about that. She will have another echocardiogram in 2 weeks to take another peek. Friday is the big day. Video EEG. We'll get a better feel on how this course of treatment is progressing after that. We pray for good news. I have already prepared myself for another 4 weeks of injections after friday and I am ok with that as long as we see improvement in her hyps arrythmia. For those of you that don't know, Hyps. are the chaotic discharges firing all over her brain that causes the spasms and leads to the deterioration and delay of development. BE GONE HYPSARRYTHMIA!!! So all of my prayer people, thats the focus of our week. That friday will come,we see marked improvement in her EEG and these nasty episodes are gone completely and a thing of the past. Continue to pray for all of our strength to see this latest bump,or mountain , in the road, vanish and she can get back to doing just regular baby stuff. Thanks for checking in on us , it is appreciated more then you know.