Monday, April 6, 2009

"Sometimes God calms the storm,Sometimes He lets the storm rage and calms His child."

Day 21.We are tired.All of us.Well,actually,Miss Zoey seems to be faring the best of all.How that is possible ... I have no idea.Her little fighting spirit and her gentle easy going personality,is just magical to watch each and everyday.She is on the brink of leaving pneumonia and RSV in the dust for good.A few breathing treatments late Saturday night and early Sunday morning,made all the difference.Coughing has diminished greatly over the last day or so and it is the consensus of all, that Zoey exceeded every ones expectations on how the latest would play out.Zoey's ANC is 10,which might as well be zero and that is a good thing.It means there is only one way to go and that is up.The question is how long up will take?She is working with a whopping 10 in the immunity department and her whites are 1 as well.That combo can spell big trouble for additional infection so it is my fervent prayer that Zoey flip into total marrow recovery sooner rather than later.Till then our prayers remain constant that she is able to fend off the bad stuff,generate the good stuff and maybe,by weeks end,find her way home.Have got to cut this abruptly short.My mind is mush and my body is beyond exhausted.Thank you to my sweet friend Michelle,for the quote.I do feel an amazing calm as I pass through these days.A beautiful peace that God has given, to sustain me through a long stay, riddled with uncertainties.My anxiousness is often based in my inability to be in two,or in my case,6 places at once.I feel disjointed from my other children's lives and wonder when our new norm will begin.My faith in Zoey and her ability to pass through this latest storm over the last 5 months,has never been in question.My ability however, is an entirely different story.I continue to move forward one day at a time,one moment at a time,one now at a time.Only one way I can navigate this current crisis and that is by living in the now.And this now .... has got to be off to bed.Zoey sends her love and kisses and believe me,there has not been a shortage of those the last week.She is quite the professional with blowing kisses and maybe I will just have to capture in onvideo for you all.Thank you again for the faithful prayers and well wishes.We continue to be humbled and moved by the power and impact of them all.

17 comments:

Loren Stow said...

Thinking of Zoey every day! I am so pleased to hear that her infections are subsiding - I hope that she stays clear and free of any other bugs!
All our love and hugs!
Loren & Malakai

Michelle said...

My dear, strong, sweet Heather. I have 100% faith in your unwavering abilities too! God choose you for Zoey, God knows your heart, your soul and your ability to fight, to impact people and give them hope and your ability to make it through any storm. As you never doubt Zoeys abilities, never doubt yours. In the midst of your battles,your storms, you have an amazing gift to give light to others walking through darkness, to calm the hearts around you and lend strength and courage all at the same time! I pray one day that you will see yourself the way God sees you...the way I see you. Sweet dreams my friend and big sweet kisses to Zoey!

Kristen's mom said...

Oh my! Your words are so familiar. Count recovery is so hard! Kristen and I have been home for about 10 days following round 5. She is still weak and trying hard to get her strength back. If her blood counts look good today, then tomorrow we go in for what we hope is our final Bone Marrow test. I know exactly what you mean about being so dis-connected from the lives of your other children. Life went on without me for the past 7 months. It is so good to be home and hoping for finally some normalcy back in my life. You'll be there soon!

Reagan Leigh said...

Hang in there Heather, you'll be home before you know it. I can hardly wait to see the video of Zoey blowing kisses! She's such a cutie! Her ability to be joyful despite the circumstances, I know is what keeps you going. Thinking of you as always.
Tera

scrappy quilter said...

Continued prayers for Zoey. She is one little trooper. I love reading your updates to see what God is doing.

Googsmom said...

You are Prayed for daily. {{{{HUGS}}}}

Jeanette said...

I have been gone for a little over a week. So sorry to hear that Zoey has been fighting RSV and pnuemonia. What a trooper she is! I found this advocacy day in Washington DC in June for curing childhood cancer. We just did something along these lines for DS in February. http://www.curesearch.org/Newsletters/RTD042009/index.html I know that your plate is MORE than full, but maybe you know someone who can go one Zoey's behalf or just another in your circle that would/can attend. It was a powerful day when we went for DS.

Anonymous said...

Constant prayers, constant love. Can't wait for the blowing kisses video. Warrior mom, you get some rest and stay healthy and strong. xo Christi Harman

Adam said...

amazing quote! Thanks.

Kristy said...

Heather-sorry I have been MIA for awhile. Still think and pray for you and Zoey everyday!!! Hope Zoey gets to come home soon!!! Zoey just gets more and more beautiful!! hugs xoxoxo

Alisha said...

I think of little Zoey often. It amazes me how happy and healthy she looks. Would love to see a video of her blowing kisses!

wvamom said...

When you posted about how well Zoey is weathering the storm, I couldn't help but think about our16year old son with DS. He has had such a great attitude in everything he's been through-several surgeries, pain, and just the struggles that go along with having a disability,and today, another surgery, on his gums--yet he's laughing and interacting, as if it were nothing! I'd be in a hole somewhere! I am amazed at his ability to weather storms.

One advantage our children have at this point is, they don't worry about the future to the extent we moms sometimes do--they trust us to help them. Just like, now that I think about it, we should be trusting God...

Thanks for all your posts. I pray for Zoey every day.
Carolyn

heidi marie said...

i'm glad zoey is getting over the rsv and pnuemonia. she is so strong...there should be a super hero based off of her. super zoey is all i can say...well and super family as well. i can't even imagine how worn out everyone is. i pray that this all ends soon and zoey remains healthy and happy all the days of her life. she is so beautiful and precious. all of you are in our thoughts and prayers everday.

dg darling said...

I found your blog through the Riggs family and have spent a lot of time in the last two days catching up on your story. What a beautiful girl sweet Zoey is! Her red hair is stunning and every time I see a picture of her smiling I can't help but smile back. She is an incredibly special child...But, you knew that! My heart breaks for all she and your family have gone through. I have cried as I've read of the heartache your family has gone through while watching Zoey endure all that she has. I know that you have had "Mommy Guilt" hit wondering if you could do more and sad that you haven't done enough. You have inspired me, even in the "not enough" moments, and Zoey has definitely captured my heart!
You and your precious Zoey are in my prayers. May Father in Heaven bless her with healing and your family with strength and peace...

Ian Marrey said...

Just catching up and good to read that Zoey is keeping you all on the straight and narrow. Jude's got pneumonia too and has been doing the 'coughing up the lung' thing too...I love the way my friends in blog land describe these things....

Let Zoey take you by the hand, she knows where she's going.

love 2 u all

Ian

Melissa said...

I'm catching up on your precious little girl...WOW, she's just so amazing! I do have to say that as a Mother, YOU inspire me as well;)

So glad that she's doing SO WELL! Keep on fighting sweetheart! Praying for you & know that you've got our great Father God watching over you!!!
Continue on being strong...before you know it, you'll be home with your sweet, HEALTHY Zoey!
{{HUGS!}}

britney said...

nice post and thanks for sharing....

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Britney
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