Thursday, December 29, 2011

Just a little glimpse of our Christmas magic ....

Things were pretty magical around these parts. Lots to share. Too much actually, to share right now. In this very moment, exhaustion has caught up with me. Burnt out from the festivities and fun. And then, there is the little thing called non-stop organizing I have been doing the last few days. Yep, I am crazy like that. Every closet, cupboard, and dresser drawer, cleaned out. 5 bags of clothes and such, were dropped off at Goodwill this morning. Felt great. Purging and giving away. Cleansing. Great way to start the New Year. For now though, gotta share a bit of Miss Z with you.

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Signing apple

She received "The Very Hungry Caterpillar" book from Jessica's boyfriend's parents, Mike and Jean. Zoey was just so darling listening to Mark read it to her and Charlotte. So cute sitting there and signing along with the words she recognized.

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Signing hungry

Reminded us all of the simple joys found in this season. I sat there watching her in all her loveliness and realized something I have been going back and forth on since Zoey's neurology appointment last week.

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Which I must say, I was absolutely blown away by all the amazing comments and advice and wisdom filled words, shared by all of you. Such love and support of my girl. And also, let me say, I am sorry about my absence on so many of your blogs. I am trying desperately to get my groove back on and slowly but surely feel myself resurfacing .

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Signing butterfly.

I have to tell you, that peace that I had initially felt, didn't last long and for now, watching Zoey, in all that she is today, and all that she has become, I just can't bring myself to start the wean. Just don't have the courage to risk the place she is in right now. That may change and probably will have to over time, maybe sooner rather than later, who knows, but as of today, no wean January the 1st. Status quo continues to be my trusty safety net.


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11 comments:

Kristin said...

Read through the comments after my question on the last post. Wow. I don't think I could wean knowing that the meds may not work again if the seizures started back up.
P.S. Got your card Christmas Eve - love your family picture. Here's to a Happy New Year!!

The Annessa Family said...

Your the mama and you know your girl! Thanks for sharing those pictures of that beautiful little lovie!

Brooke
www.TheAnnessaFamily.com

Cammie Heflin said...

Love that Zoey girl! She's one beautiful butterfly herself! You wean when you're ready, you will know when it's time :) I have a secret, you might want to text me!

Salinas family said...

Dear Dear Heather,
You'll know when it's time. You will feel it in your gut and in your heart.
For now, just continue to enjoy where she's at and the progress she continues to make. She is happy and progressing -- isn't that what we want for each of our kids?
Love you,
Karen

Rochelle said...

We love that book, the girls got it too for Christmas because I couldn't keep the libraries version any more months. LOL

Bea Braun said...

Heather this must have been a difficult decision for you and Mark. As we sat in mass on Christmas eve watching Zoey and enjoying her exuberance and curiosity, I felt a sense of trepidation and prayed that those nasty seizures would never return. She has come so far. When the time is right you will know. Love the pictures!

Carolyn said...

What gorgeous pictures of your little one signing! I totally understand about not wanting to wean from the Topamax just yet. She's obviously doing so well!

Happy New Year, and congrats on the clean cupboards and closets. It always feels so good to start fresh this time of year.

Elizabeth said...

And I think that's fine. It's weird to have a start date for anything, anyway. I prefer impulsivity. One day you might wake up and decide "it's time." And if not, no worries.

I love that Zoey Girl.

Shelly Turpin said...

love the pics of her signing with that book! :)

I totally understand you not wanting to wean. Your seizure med is my vent. the outcome is so unknown.

love to you and yours for the new year!

Mommy to those Special Ks said...

She is just beautiful!! You sound like you are at peace with your decision and that's what matters. YOU know Zoey better than ANY of those doctors... you'll know when the time is right to start weaning. Happy New Year!

colleen said...

Sounds like you will know what to do and when to do it and your team will be there to support you no matter what the decision....Happy New Year... such beautiful pictures!